It's about avoidance due to the (in their mind, incorrect) fear a relapse could occur, not stopping an activity because it's somewhere between...
Fukuda allows a wide variety of illnesses, but the actual composition of the cohort is maybe highly reflective of the place of recruitment. Maybe...
I'm not doubting that it is normal in the circumstances. It seemed an interesting observation and I wanted to know if other people were...
I don't know why. I'm describing what I'm guessing is a popular view. Maybe I'm wrong. I don't have insight into the collective mind of the...
An obstacle appears to be: For a doctor to justify seeing patients with ME/CFS, some useful treatment or diagnostic procedure needs to exist that...
A symptom that is important for me, but is hardly ever mentioned, is aversion to activity. It is something that develops as I become more...
To put things in perspective, my last bad next-day crash was last summer because I avoid the kind of activity level that is likely to cause them...
This looks like a study with some effort and thought behind it. However the interpretation that this is a problem of symptom processing seems a...
In my case, which was initially nothing worse than having a few bad days per month, a good clinician would have been able to recognize a pattern...
In the minds of many researchers and clinicians, CFS is a state of unusually strong or persistent fatigue. And some of them then oppose research...
I have tried the following: 1. Spend almost all of my time during the day in a beach bed with raised back rest. In terms of horizontality and...
What's a natural way for a person to turn into a grifter? Maybe starting with a treatment that really works for some highly selected patients,...
I think I have understood something important that could explain why there exists two groups with very different views on ME/CFS that each think...
It seems naive to assume that the effects are due to meditation when monks likely differ in so many ways from the average person, some of which...
The closest to a useful questionnaire would be something that attempts to work out how large the energy reserves of the patient are, and how well...
It's typical for me to feel relatively good hours or days before crashing. The feeling good is the emotional component of a "be active and get...
We just assume that questionnaires are measuring the intended things but it's not difficult to see that patients often do not have an accurate...
Chronic illness is not the ideal moment to work on becoming a better person. I would argue that this idea has medieval christian origins and the...
If a diagnostic construct is associated with lots of other things maybe that construct lacks specificity.
If they can find a good patient, carer of family member for the role, then there is nothing wrong with 4 hour sessions. It will help speed things...
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