Link to trial protocol: https://drks.de/search/en/trial/DRKS00028115 see post above: Edit: From the trial protocol: Primary outcome:...
https://innovationsfonds.g-ba.de/projekte/neue-versorgungsformen/cfs-care-versorgungskonzept-fuer-patienten-mit-chronischem-fatigue-syndrom-myalgis...
Thanks Andy. Haven't even been able to listen to it yet -- just expect that it's as instructive as Adam's rebuttal of Fiona Fox's inaccuracies...
Yes, that's correct. Also:
Do we have a transcript of this? Turns out that could be useful for any comment on the freshly published IQWiG report on ME/CFS. (see News from...
Related 'Health Information' for people with ME/CFS:...
IQWiG just have published their report on ME/CFS. Press release (German) here. From the press release / google translate: "The information...
Michael A Osborne on Twitter: "This is Alem Matthees, from my home town of Perth. Alem has ME/CFS, and he filed the FOI request that busted open...
Sheffield ME & Fibromyalgia Group on Twitter: "Join us online/in person at @CircleSheffield on Friday May 12th for our #WorldMEDay celebration!...
Link to the questionnaire (docx file) here.
Science Media Centre's (UK) take on this: Dr Michael Zandi, Consultant Neurologist, UCL, said: “The authors present a study looking at factors...
Apologies, off topic but find it hard to cope with the fact that a number of forum members much smarter than I and who started or were engaged in...
Could you give examples? I don't get why you need psychometric measurement tools for monitoring patients with ME/CFS. I think a smart symptoms/...
Maybe a difference is that talking about RA symptom and coping with the disease and treatments is not as 'complex' as talking about ME/CFS...
Related to the discussion on developing assessment tools for monitoring disease activity/ impact/ disability -- Why is the term 'psychometric'...
Apologies, only read the abstract and thought the paper's main finding was that not all reductions in functioning relevant to people with ME/CFS...
Hi @sarahtyson & welcome to the forum. Great to have you -- as an expert who's also a person with ME/CFS and a carer -- on the forum engaging...
This paper posted on a thread of its own might be a useful addition to the discussion (not related to ME/CFS) ?
Recently was reminded that there's a translation of Jo's testimony into German. Translation was commissioned by the German charity Fatigatio --...
Don't think it was redundant. Also, still hope I or anyone else will be able someday to a) find people who could (help) translate it into...
Separate names with a comma.
