Cohort Participation This is my best effort currently at explaining cohort participation. There is some missing information and things don’t line...
There are many possiblities I think. They may have recieved SMC and then after, SMC + LP. They may have been SMC + LP that changed cohorts,...
I wanted to make a thread separate from the letter's calling for retraction of SMILE so I don't bog them down with thinking aloud. Hopefully some...
I'm not sure if it's the results or just the graphs. I want to go back and recheck everything because it's possible my brainfog made a mess of...
Something else caught my eye. 1) In their final results, the authors reference a baseline dataset before cohort swapping because their reference...
Well I think I'm totally lost - is the primary outcome graph mislabelled?! These numbers are consistent with the 11 patients switching and for...
Neither have I! I have a longer reply I will post in this thread later when I have more energy, but it looks like this is what happened for 11 of...
A little addition to my previous comment: Of 51 patients, 9 were moved to SMC from SMC + LP, 2 of 49 were moved from SMC to SMC+LP post...
It appears you could drop out after the phone call but still be considered a participant in the original proticol. It is techincally part of the...
I agree politicians won't stick their necks out on me/cfs unless there is a breakthrough. They don't want to get mugged down in the psychosomatic...
I'm glad these researchers are being honest and presenting negtive or mixed results and I'm glad they are organizing these conferences. Still many...
Argh. Literally, yes. The methods don't make it clear if anyone dropped out like in the material you quoted. That would be pretty damning, but it...
That is what is strange about the whole thing. You would think someone would have said "wait a second, what actually is this treatment?" And then...
Hoping to hear progress from Hanson, Tompkins (really like this guy), and others. Interested in what the bio-engineer is going to be looking at...
If it is a signalling problem, is it likely that the absolute volumes of the metabolite, or whatever factor, are normal since most everything has...
@Ravn @rvallee I do not have gustory rhinitis, mine is constant. The anti-cholinergic spray is suppose to be quite good at rhinorrea, the...
The first step is to see and ENT. The ear issue sounds like eustachian tube dysfunction. They could do a CT scan of the head to see if fluid is...
Have you tried the nasal spray combination in post #6? It is the combo recommended by UpToDate. Could you provide references for that? I've heard...
I think it's this combined with what @Esther12 first said, it's a very effective narrative. Internet activists disrupting the efforts of humble,...
I think we have a new precedent from BMJ. Personal reassurances after the fact are an acceptable way to get around core research guidlines. That's...
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