Apart from the other obvious aspects that could make this a great project, this could make it very feasible to include a group of severe ME/CFS...
Yes, there was even a discord channel where a substantial part of the total trial participants were sharing their experiences (I think that is...
Doesn't sound like anything much to do with IgG reduction to my ears (more like something along the lines of very specific interactions of immune...
Without any evidence of the opposite, all that tells us currently is that presumably as many people in the placebo group also got better!
I'm not sure what the reference to IgG reduction and the other post is supposed to be. As far as I understand Jonathan has said that total IgG...
And pretty much an abundance of other biologics or drugs acting on FcRn (Nipocalimab, Batoclimab, Rozanolixizumab...) as well as newer mAbs to...
I'm not sure what the point of this is supposed to be, but it seems like it misses some drugs like Efgartigimod (which has been studied in LC), a...
It advertises things such as "Mitochondrial Disorders and Fatigue" treated with "nutritional treatments and also the use of blood oxygen ozone...
Seems like there is wishful reporting and the omission of negative trial results (for instance Immune adsorption for the treatment of...
I cannot remember what I was trying to say and reading my comment doesn't make it clearer (I'm unsure whether my statements are supposed to be...
This study is a further analysis of the following work: Prevalence and predictors of long COVID among non-hospitalised adolescents and young...
I am aware that there is currently no evidence that suggests that saline infusions do anything in the context of ME/CFS (current trial ongoing by...
I think you will find that on a public forum there will be many people with misconceptions about all sorts of things, just as I have...
Sorry, I have asked you for an example of a BPS paper into ME/CFS that provided meaningful insights into ME/CFS and you responded with 3 links....
Thank you for joining S4ME @dundrum. I think if you are able to spend more time on this forum, you will find that all research of low quality will...
I would suspect so. They are not just showing positive results to their participants but changes in specific measures on subjective outcomes...
Of course we know it doesn't work for everybody as this has been shown in multiple trials. The existence of this website is proof that it doesn't...
But what does any of that mean? You would have to figure out dosage and duration and how will you do that without knowing anything or are you just...
I think you may find that many people on here have interacted with this research. You will even find that some members on this site have published...
Probably not because nobody knows what to test for in PEM. If we can't differentiate between healthy controls and pwME there's currently no...
Separate names with a comma.
