Yes, Colin Barton's name is always out there. The Sussex and Kent ME/CFS Society has been a registered charity since 2000. Their three Trustees...
Being "fair" to Colin Barton is not the issue. Barton disparages ME patients who disagree with him and his stance on ME services. Barton's...
https://www.s4me.info/threads/united-kingdom-sussex-kent-me-cfs-society-news.1906/page-8#post-433495 Colin Barton, Chair of the Sussex and Kent...
Sussex Argus 'Lewes chronic fatigue woman 'forgotten' by health service' 'A WOMAN has told of her loneliness and isolation after becoming...
That case study just reinforces damaging myths about ME. I don't think it's accidental either. More like sabotage.
The interviewer totally bought into Garner's 'fear response' narrative and proceeded to be a mouthpiece for Garner's nonsense, emphasising fear...
Brainfog is a terrible name for significant cognitive disfunction. The term is increasingly being used by members of the general public who say...
Thank you John. And no thank you. Garner says 'Brainfog' is tiredness, and a fear response. Garner misinforms the interviewer so much that the...
Colin Barton, Chair of the Sussex ME/CFS Society so called Patient Group changes his tune as often as it takes for him to hang onto power. ME...
Non-Recoverers are rediagnosed with one of the never ending faux diagnoses - Pervasive Refusal Syndrome (PVS), FII, FND, PPS, ETC. Bath clinics...
Post copied from the general thread about UK clinics This 2022 post-NICE document is a horror. It's long, pays lipservice only to NICE 2021....
This 2022 post-NICE document is a horror. It's long, pays lipservice only to NICE 2021. The 'T' Word (Tiredness) is in there of course. I...
'Frances Williams, a professor of genomic epidemiology and part of the team running the Zoe Covid Symptom Tracker app — the world’s largest study...
There appear to be dozens of uninformed but verbose fools responding to the original long nonsense review, confidently speculating at length about...
Yes, I also registered and signed up for updates on the Decode ME, but there is just too much repeated information in the emails.
How many kits have been sent out so far? And what is the inclusion criteria for Decode?
Not for some in the Comments it appears. Not content with gaslighting themselves, one commenter is patronisingly gaslighting us too: "physical...
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