We already have a bunch of decent definitions of MECFS. I’m not particularly interested in what a Twitter rando has to say. Sorry, but this is not...
https://www.science.org/content/article/should-you-pick-novavax-s-covid-19-shot-over-mrna-options Should you pick Novavax’s COVID-19 shot over...
[MEDIA] Harmony Biosciences just announced a failure of their phase 3 idiopathic hypersomnia (unexplained sleepiness) trial. This was a junk,...
Probably because of funding. I’m fine with them publishing a case study. Now they have something that they can cite for developing a larger proposal.
Long Covid Long Bio TLDR https://useagles.org/teammembers/paul-e-pepe/
[MEDIA] Confirmed by leading Long Covid researcher @microbeminded2: 1. Long Covid is new & novel 2. Long Covid’s major driver & area of research:...
Thanks—can you provide the direct link to this presentation?
Another article—NY times—long....
https://www.medpagetoday.com/neurology/multiplesclerosis/106570 Most patients with relapsing-remitting multiple sclerosis (RRMS) treated with...
https://wapo.st/3PDbBnB If the hypothesis that misfolded proteins start in the gut and travel to the brain is proved, it could lead to early...
But five years without disease is great! For MECFS some of the CYCLO ME patients are still cured as are some MECFS patients who received...
Richard Burt from Northwestern U was engaged in HSCT trials pretty recently—but something happened....
https://www.healthrising.org/blog/2023/09/25/black-blood-apheresis-chronic-fatigue-syndrome/ Patrich Ussher traveled from France to Bayreuth,...
[MEDIA] But also Bruce Peterson.
Hey did you consider contacting the study authors regarding this? Thanks
You mean to only trial it in MECFS patients with a positive ANA test?
Thread with summary of findings. [MEDIA]
[MEDIA]
This was published in Nature… impressive (I think).
https://rmdopen.bmj.com/content/9/3/e003464 Here, we report the first two cases of patients with severe complications of SjD, refractory to RTX...
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