Ah, but what about treatments that aren't known to reliably cause harm to PWME? After all, water is known to cause harm in certain situations....
I think gut research is still in the very early stages. It's not as simple as studying one single aspect, such as maldigestion of a single sugar....
I'm sorry there aren't more people who have found reliable PEM-blockers. That would add another comparison: trigger activated, but with or...
With the PEM/non-PEM testing, you can add individuals who have reliable cognitive triggers, as another comparison. I think cognitive-triggered...
Not easy at all. There are just too many factors that change during exertion ... and time of day, and day to day, and what they ate and what...
I think it would be better to find a few people with reliable PEM triggers and responses, and do PEM/non-PEM comparisons for those individuals....
I wouldn't consider it even barely started. Decades of doing the same blood tests over and over doesn't constitute basic science. We still don't...
Going through covid might make people change their diets, activity levels, and stress over getting new illnesses, all of which could increase the...
I fit that!
The current crop also include the BPS garbage. There are hypotheses that involve specific molecular pathways, but at present we have no way to...
Even that might be useful. If one person's ability to switch PEM off by eating strawberries is a unique mutation, it's still affecting the PEM...
I had PEM from exertion long before I realized there was a connection. I think it took years before I accepted that the lousy days were generally...
It's too bad that we can't sniff books to know their quality.
So true. Two days ago a eye specialist asked me what ME was ... and despite years of reading descriptions here, I still struggled to explain it.
It isn't one or the other. There are a small number of PWME who have treatments that work reliably for them, for at least one symptom. We don't...
In that situation, wouldn't there be some people faking the disease and recovery, just to get "likes" or whatever people try for in those groups?
If 13 millions PWME try a dozen compounds each, just by choosing a food available locally that they haven't tried before, there's a chance that...
Since I haven't found any fancy drugs that seem likely, I select test treatments that are cheap, convenient, and safe. Containing untested...
I recently read some stories about cold immersion providing benefits, including improving autophagy. If it worked for ME, I would have expected...
That doesn't work if the problem is hidden deeply inside brain cells. It could be the contents of vesicles that only travel from one part of the...
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