I've got three for an eating related one, but they've re-awarded the same for an assessment done years ago. The scoring might have changed now. I...
No, me neither. As well as being against Labour's ethos, I think it leaves them open to legal challenges. Only one questionable issue has...
They can be scored 3 in some cases. I only know because one of mine is—it indicates you're considered only able do the thing with the aid of...
I guess yes and no—it depends on how you're looking at it? You could argue that someone who's unable to do one of the essential activities of...
I wouldn't worry too much yet. It's all got to be finalised and there might still be changes. Presumably it will only apply to new claims and the...
It should be on your award letter. As well as the six-page letter, they always include a single sheet that you can use as proof of entitlement....
Yep, although it only applies to daily living. For some reason they've left mobility as it is. Maybe it's part of trying to reduce the number of...
For instance, I scored 19 points for daily living across 10 different activities. On nine of the activities, I scored between 0 (no difficulty)...
That is quite a change then, because at the moment people may get an award even if they only score two in several areas—they can add up to enough...
Abrasive therapy was looked at once in ME/CFS. I think it was just one of those papers that raised it as a possibility after trying it on a few...
I think the answer has to be yes, because even if sensory stimuli and emotion had little or no effect on our cognition (which I doubt is true...
Another nice cheering Grauniad article:...
I've been wondering about that. Even in the context of ME/CFS, if you broaden out "PEM" beyond a certain point it becomes synonymous with...
Yep. That word "data" does a lot of work too. The bloke at the former pizza place insisted he got a 10% response to leafletting littering our...
Me neither. If I had to rely on ME/CFS, I've got a GP diagnosis from 1999. I've never seen a specialist. They always ask for recent evidence...
Nope. I'm not sure they know what they're on about. They seem to have seen numbers on a spreadsheet that don't match some other numbers, and...
Yep, I understand that. The reason I keep poking at it (and I apologise, I know I'm not really getting us anywhere!) is that combining all...
Funny you should say that Kitty.......
I can see the potential confusion, of course. I spent years in PEM before I even realised it was delayed, and pre-internet—when patients very...
I wonder if they might get away with the proposal to restrict access to PIP on mental health grounds? The narrative about people thinking of the...
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