1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 21st April 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 33 of 40
  1. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid care: ‘There has been a sense of swimming upstream on my own’ One patient tells of 18-month waiting time to access a Covid clinic, says...
    Post by: Tom Kindlon, Sep 3, 2021 in forum: Long Covid news
  2. Tom Kindlon
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Also: [MEDIA]
    Post by: Tom Kindlon, Sep 2, 2021 in forum: UK clinics and doctors
  3. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Somebody on Facebook highlighted this thread: https://www.s4me.info/threads/the-harassment-campaign-references.661/#post-11067
    Post by: Tom Kindlon, Sep 1, 2021 in forum: Advocacy Projects and Campaigns
  4. Tom Kindlon
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    I have now shared this on Twitter [MEDIA] and Facebook https://www.facebook.com/TomKindlonMECFS/posts/2046658568815591
    Post by: Tom Kindlon, Sep 1, 2021 in forum: Advocacy Projects and Campaigns
  5. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    The slides and a transcript of the May 2021 CDC ME/CFS Conference Call are now available. Discusses the so far unpublished multicentre CDC study...
    Post by: Tom Kindlon, Aug 30, 2021 in forum: News from organisations
  6. Tom Kindlon
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Also: From: Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic...
    Post by: Tom Kindlon, Aug 23, 2021 in forum: UK clinics and doctors
  7. Tom Kindlon
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Dr Phil Hammond has started a discussion about graded exercise therapy. Here are some extracts from the PACE trial manuals in a published letter...
    Post by: Tom Kindlon, Aug 23, 2021 in forum: UK clinics and doctors
  8. Tom Kindlon
    Post

    Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study, 2020, Cullinan, Kindlon et al

    Our new blog post on the HRB Open Research* website: "It’s time to start listening to people with Myalgic Encephalomyelitis"...
    Post by: Tom Kindlon, Aug 20, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Tom Kindlon
    Thread

    Fluctuating pressure pain sensitivity, including time to redness; worsens in times of PEM

    When I overdo it, how long I can remain in one position (either sitting or lying) drops because the skin becomes sore from the pressure. An...
    Thread by: Tom Kindlon, Aug 9, 2021, 0 replies, in forum: General and other signs and symptoms
  10. Tom Kindlon
    Post

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    Nothing new here: Monitoring Treatment Harm In NHS https://doctorswith.me/monitoring-treatment-harm-in-nhs/
    Post by: Tom Kindlon, Aug 5, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Tom Kindlon
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The BMJ has a long history of bias in its coverage of ME/CFS. There was even a paper published on it: "Chronic Fatigue Syndrome: Editorial Bias in...
    Post by: Tom Kindlon, Aug 3, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. Tom Kindlon
    Post

    A general thread on the PACE trial!

    [ATTACH] From: The Lancet, China and the origins of coronavirus...
    Post by: Tom Kindlon, Jul 27, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Tom Kindlon
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    Reminds me of the biobank in the UK, which seems pretty uncontroversial.
    Post by: Tom Kindlon, Jul 23, 2021 in forum: Recruitment into current ME/CFS research studies
  14. Tom Kindlon
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    Okay, thanks for replying. As the first post itself says, that is copied from the Massachusetts ME/CFS & FM Association July 2021 Newsletter. I...
    Post by: Tom Kindlon, Jul 22, 2021 in forum: Recruitment into current ME/CFS research studies
  15. Tom Kindlon
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    It looks like you are quoting something from the Massachusetts ME/CFS & FM Association July 2021 Newsletter rather than anything from the project...
    Post by: Tom Kindlon, Jul 22, 2021 in forum: Recruitment into current ME/CFS research studies
  16. Tom Kindlon
    Post

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    To facilitate sharing: [MEDIA] [MEDIA]
    Post by: Tom Kindlon, Jul 22, 2021 in forum: Recruitment into current ME/CFS research studies
  17. Tom Kindlon
    Thread

    Open US NIH-funded mega project, All of Us, to characterize and track the health of one million people in the US

    Image from Massachusetts ME/CFS & FM Association July 2021 Newsletter https://www.massmecfs.org/newsletters/773-2021-07-july-newsletter...
    Thread by: Tom Kindlon, Jul 22, 2021, 16 replies, in forum: Recruitment into current ME/CFS research studies
  18. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    (Ireland) Both the deputy chief medical officer and the Minister for Health mention Long Covid in this article. --- --- ---...
    Post by: Tom Kindlon, Jul 17, 2021 in forum: Long Covid news
  19. Tom Kindlon
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    [MEDIA]
    Post by: Tom Kindlon, Jun 30, 2021 in forum: Long Covid news
  20. Tom Kindlon
    Post

    Closed Recruiting: La Trobe University mitochondrial research.

    I'm a little confused. Would it be okay to take a screenshot of the attachment and post it on Twitter, Facebook, etc.?
    Post by: Tom Kindlon, Jun 29, 2021 in forum: Recruitment into current ME/CFS research studies
Showing results 641 to 660 of 794 Next >
Search Again
Page 33 of 40