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  1. Tom Kindlon
    Post

    Severe ME Day, August 8 2023 and Severe ME week

    One week to go. Hopefully lots will use it as an opportunity to raise awareness and understanding. Some severely affected patients may be...
    Post by: Tom Kindlon, Aug 1, 2023 in forum: General ME/CFS news
  2. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    This response has also not appeared so far on the @JNNP_BMJ site along with one @Joan Crawford submitted
    Post by: Tom Kindlon, Aug 1, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  3. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Very disappointing that 14 days have now passed & this hasn’t been posted by the @JNNP_BMJ Unlike another comment that was removed, this...
    Post by: Tom Kindlon, Aug 1, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    Bloom Emerge Australia welcomes recording artist Bloom as our newest Ambassador. https://www.emerge.org.au/people/bloom/
    Post by: Tom Kindlon, Jul 31, 2023 in forum: General ME/CFS discussion
  5. Tom Kindlon
    Post

    Persistent endothelial dysfunction in post-COVID-19 syndrome and its associations with symptom severity and chronic inflammation, 2023, Kuchler et al.

    This has now been published. Free fulltext: https://link.springer.com/article/10.1007/s10456-023-09885-6
    Post by: Tom Kindlon, Jul 30, 2023 in forum: Long Covid research
  6. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    This article doesn't include that many details Casey Stoner provides health update on chronic fatigue issues...
    Post by: Tom Kindlon, Jul 30, 2023 in forum: General ME/CFS discussion
  7. Tom Kindlon
    Post

    Well-known, famous people with ME/CFS (public thread)

    A light-weight article about Martine McCutcheon sharing on Instagram that she had suffered a big flare up of her #CFS lately....
    Post by: Tom Kindlon, Jul 30, 2023 in forum: General ME/CFS discussion
  8. Tom Kindlon
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    First time I recall seeing a one-page sheet like this: "ME/CFS* IN PRIMARY CARE: Guide to Assessment and Management" *Myalgic Encephalomyelitis /...
    Post by: Tom Kindlon, Jul 29, 2023 in forum: General Advocacy Discussions
  9. Tom Kindlon
    Thread

    Hypothesis The Potential Role of Ocular and Otolaryngological Mucus Proteins in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, 2023, Craddock et al

    The Potential Role of Ocular & Otolaryngological Mucus Proteins in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Free full text...
    Thread by: Tom Kindlon, Jul 29, 2023, 5 replies, in forum: ME/CFS research
  10. Tom Kindlon
    Post

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    A recording has now been posted in the last 24 hours. A webinar recording featuring a presentation titled, “Myalgic Encephalomyelitis/Chronic...
    Post by: Tom Kindlon, Jul 27, 2023 in forum: News from organisations
  11. Tom Kindlon
    Post

    Trial Report Autonomic nervous system dysfunctionalities in patients with stress-related and functional syndromes versus healthy controls, 2023, Ramakers et al

    Here are other conference presentations and published pieces by this group:...
    Post by: Tom Kindlon, Jul 26, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Tom Kindlon
    Thread

    Trial Report Autonomic nervous system dysfunctionalities in patients with stress-related and functional syndromes versus healthy controls, 2023, Ramakers et al

    https://documentserver.uhasselt.be/handle/1942/40595 Title: Autonomic nervous system dysfunctionalities in patients with stress-related and...
    Thread by: Tom Kindlon, Jul 26, 2023, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Update from JNNP re: @MEActNetUK eletter "Please note that a previously posted Rapid Response was taken down because of inappropriate inflammatory...
    Post by: Tom Kindlon, Jul 26, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I wouldn't consider this to be the BMJ. The BMJ itself though being very biased in its coverage of ME/CFS has actually been very good at posting...
    Post by: Tom Kindlon, Jul 25, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. Tom Kindlon
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The Journal of Neurology, Neurosurgery & Psychiatry has now removed the @MEActNetUK e-letter (see:...
    Post by: Tom Kindlon, Jul 25, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  16. Tom Kindlon
    Post

    News from Spain

    CONFESQ Launches III Research Conferences on Fibromyalgia, Myalgic Encephalomyelitis, Multiple Chemical Sensitivity and Electrohypersensitivity...
    Post by: Tom Kindlon, Jul 24, 2023 in forum: Regional news
  17. Tom Kindlon
    Thread

    Trial Report A Cross-Sectional Study of Symptom Prevalence, Frequency, Severity, and Impact of Long-COVID in Scotland: Part I, 2023, Mclaughlin

    Free: https://www.amjmed.com/article/S0002-9343(23)00460-6/fulltext A Cross-Sectional Study of Symptom Prevalence, Frequency, Severity, and...
    Thread by: Tom Kindlon, Jul 24, 2023, 0 replies, in forum: Long Covid research
  18. Tom Kindlon
    Post

    USA: News from the Bateman Horne Center

    "Haley Southwick recently completed a 330 hour training rotation at Bateman Horne Center for her doctorate of nursing program. She shares the...
    Post by: Tom Kindlon, Jul 22, 2023 in forum: News from organisations
  19. Tom Kindlon
    Post

    Thesis Thesis: Investigating the Genetic and Immunological Aetiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2022 Dibble

    See pre-print here:...
    Post by: Tom Kindlon, Jul 22, 2023 in forum: ME/CFS research
  20. Tom Kindlon
    Thread

    Preprint Comparison of T-cell Receptor Diversity of people with Myalgic Encephalomyelitis versus controls, 2023, Dibble, Ponting et al

    Pre-print Free fulltext: https://www.researchsquare.com/article/rs-3164397/v1 Comparison of T-cell Receptor Diversity of people with Myalgic...
    Thread by: Tom Kindlon, Jul 22, 2023, 22 replies, in forum: ME/CFS research
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