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  1. tornandfrayed
    Post

    Neuro appointment soon.... Avoiding an FND diagnosis

    I'm in a quandary at the moment. I have an upcoming GP appointment which I made up about a new rash. I don't know whether I should mention other...
    Post by: tornandfrayed, Jul 11, 2023 in forum: General clinical care
  2. tornandfrayed
    Post

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    At the most basic level, I was shocked at how many authorities ticked not applicable, as though the care of people with ME wasn't their...
    Post by: tornandfrayed, Jun 4, 2023 in forum: UK clinics and doctors
  3. tornandfrayed
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Thanks, Andy.
    Post by: tornandfrayed, May 16, 2023 in forum: ME/CFS research
  4. tornandfrayed
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    i haven't read this properly yet so I'm maybe getting it wrong - but is subtyping based on the assumption that respondents don't have certain...
    Post by: tornandfrayed, May 16, 2023 in forum: ME/CFS research
  5. tornandfrayed
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I started yesterday, but have paused to consider whether I want to allow access to my medical records. I have a lot of trust in the DecodeME team,...
    Post by: tornandfrayed, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  6. tornandfrayed
    Post

    Editorial: A research agenda for post-COVID-19 fatigue, 2022, Wessely, Knoop et al

    Another worrying aspect is that they want to dive in early in the disease progression with their exercise/CBT research. At the very point where...
    Post by: tornandfrayed, Feb 22, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. tornandfrayed
    Post

    The new NICE guidelines - do they affect benefits at all?

    Like Kitty, I just can't make myself read through my assessment. I find it too distressing. My PIP decision was both enhanced for 10 years, so I...
    Post by: tornandfrayed, Nov 20, 2021 in forum: Work, Finances and Disability Insurance
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