In Nacul's primary care study the "intolerance to be on your feet" item was reported in 61.1% of all cases (60.8% matching 1994 CDC, 79.6%...
Back in 2019 ME Action ran a survey of patients' experiences of the NHS CFS clinics. A repeat of this survey would, I think, be a very worthwhile...
I've been looking at the DHSC "Task and Finish" list of involved organisations posted by #ThereForME. Strangely, BACME appears to be listed twice....
Protocol published yesterday in BMJ Open: Link | PDF | Reviewer comments Haven't looked at it in detail but a couple of minor points: (a) It...
It should download an Office document ("This-is-ME-Feb-2022.docx"). Direct link is:...
https://www.actionforme.org.uk/get-information/care-and-support/social-care-support/
Hilda Bastian has commented further in a blog post entitled "A Balancing Act": https://hildabastian.wordpress.com/2025/02/05/a-balancing-act/
I have also wondered if there are indirect things - not ME/CFS specific but that have a wider support base - we could lend our support to that...
Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease of unknown aetiology characterised by symptoms of...
"Trial By Error: Professor Edwards’ Letter to BMJ on the Cochrane Mess":...
It has been pointed out to me that the DeepL PDF translation that I posted is rather badly formatted & a few sentences were not translated...
I think the massive campaign to preserve the Larun review may be in part about what is now necessary to obtain ethical approval for trials, and...
Click on "version history" in the side panel. Then, click on the DOI to the right of the 2009 version. Click on Download PDF/Full.
In the original German: Aus der Cochrane-Organisation erfuhr RiffReporter, dass die Entscheidung bei einem Treffen des Governing Boards, des...
Full article (DeepL translation) Update 02 Feb: As the DeepL PDF was rather badly formatted and a few sentences were mis-translated, I've added a...
I know it's not Santhouse. The term "scrutineering group" is strange - most would say "NICE committee" if that's what they meant. Was there...
There are also a number of medical professionals who get, or know someone very well who has got, ME/CFS-like Long COVID (and so are inherently...
Suspect her views re Cochrane are not so much about ME/CFS but shaped by other events - both the mask review and other events such as this:...
Might be "anankastic personalities" - couldn't hear that well though
From 00:31:23: I can't immediately identify the speaker, however according to the published list of members there was only one psychiatrist on...
Separate names with a comma.
