Some results from MEA's online survey on diagnosis that they ran earlier this year. For many questions they've differentiated out diagnoses made...
There's an article in Nature with more details about the whole grant-cancellation debacle along with two internal documents from the NIH. Iwasaki...
Hilda Bastian has posted another blog about Cochrane, mainly concerning open access to Cochrane reviews & how this might be funded, but which also...
NHS Scotland has a website with CPD courses for primary care clinicians: https://www.cpdconnect.nhs.scot/search-results?query=chronic fatigue...
Only skimmed very briefly but it's apparent that many of the assumptions they have made are rather conservative - e.g. they assume a probability...
Yup. Looking back at the paper I spotted another one, too - "capability player bias" (probably an automated rephrasing of "participant bias")....
Excellent blog, as usual. I suspect there isn't a lot of outright fraud in the ME/CFS field, just incompetence, vested interests, and third-rate...
From Isabella Cueto's article in STAT+ - hope the genetics work at Edinburgh is not going to be affected by this:
"Trial By Error: My 2018 Post on Andrew Lloyd’s Memory Lapses, Revisited"...
Abstract: Visceral pain disorders such as interstitial cystitis/bladder pain syndrome (IC/BPS) and irritable bowel syndrome (IBS) often manifest...
There's a quite detailed meeting report on the NIAID RECOVER-TLC workshop in Nature Immunology. A few snippets:
This is a misrepresentation. Kingstone et al. report that participants found NHS guidance advocating graded exercise to be unhelpful and even...
CS writes to the MP in charge of the DHSC delivery plan:...
... and Pollak's reply. Thoughtful in places, and quite right about the proliferation of unevidenced & potentially harmful treatments, but still...
https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf
An article in New Scientist called "Fight the Fatigue" that briefly mentions ME/CFS. It's somewhat muddled in places but thought it worth posting...
Abstract: Purpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic...
£23.5bn is in excess of other figures I've seen for ME/CFS in the UK. On the Government's interim delivery plan web pages they cite a report that...
A letter to the editor, commenting on a recent study which linked glucocorticoid therapy in COVID-19 patients to an increased risk of long COVID....
Copied post and some subsequent posts moved to this thread APPG minutes from 5th March:...
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