Not just NFL - there are a variety of potential/emerging biomarkers of neuronal and axonal injury such as ubiquitin C-terminal hydrolase L1...
Seriously? It seems this particular POTS clinic follows the same treatment approach whether or not the HR criterion is met: And suggestions...
Based on my own experience with the problem I'm unusually sympathetic to cases where pwME have feeding issues, and I do not want to comment on...
Is there any data as to how many of us experience full-blown PEM solely after increased cognitive activity? I may be something of an exception...
Unfortunately the remit of the Patient Safety Commissioner seems somewhat limited: From our perspective it would be very helpful if these duties...
Looking around a bit the paper that originated the term ASIA seems to be this one: It doesn't look like it's open access so here is the table...
A fascinating, and deeply troubling, tale. I was in the early stages of my illness but not part of any patient groups at the time so it's curious...
This is just a farrago of gibberish. It's a bunch of half-understood ideas and half-baked concepts plucked from the literature and re-assembled...
Alice James was indeed a fascinating individual - one of the three or four 19th century diarists who wrote about the illnesses by which they were...
Unfortunately they determined whether patients were or were not experiencing PCS using the Chalder scale: The group characteristics and SUV data:
Cardiopulmonary and metabolic responses during a 2-day CPET in myalgic encephalomyelitis/chronic fatigue syndrome: translating reduced oxygen...
It may not be a conflict of interest in the classical sense but allowing Garner to be involved with such a review such as this shows poor...
From the ME Research UK June newsletter: This is absolutely not supported by the evidence. If I recall correctly with most small fibre...
That's a really excellent overview. (You should post it as a new thread; it definitely deserves wider attention.) I'll try and track down the...
Just skimmed this very quickly. Initial thoughts: The patients "with infection-associated ME/CFS with ongoing recurrent infections" - IMHO this...
Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan...
The direct Qeios links are: Link: https://www.qeios.com/read/T9SXEU PDF version: https://www.qeios.com/read/T9SXEU/pdf and the DOI:...
May also be of interest that the authors have made at least three patent applications relating to their TRP cation channel work:...
I've read it all. It is quite unpleasant, but not blatantly so: rather, it drips its bile through insinuation. A "curious disregard for hysteria"....
Copied from this thread The NHS is apparently rolling out a "reasonable adjustment flag" to share details of physical, sensory, communication &...
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