Abstract: BACKGROUND: ME/CFS is an illness which is exclusively diagnosed through reported symptoms. Most people affected by myalgic...
New CONSORT update for clinical trial reporting. Includes new items on data sharing, conflicts of interest, PPI, harms and intervention delivery....
https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awaf062/8104772
The problem is that anonymisation can effectively be undone when you have access to other large-scale datasets of personal information. A...
There are also those of us who are fairly severe yet do not get PEM from cognitive exertion - in my own case, cognitive exertion reliably produces...
I had thought that the mechanism of mimicry in acute rheumatic fever - the similarity between the epitopes in conserved regions of GAS M protein &...
Interesting to see what is being said about ME in Russia. Correct diagnostic code (G93.3). They recommend Fukuda and quote paediatric diagnostic...
The service is located at the Maudsley. How many patients would accept a referral to one of the most well-known psychiatric hospitals in the...
I wondered how far back the term "pacing up" actually went; there are surprisingly few papers that use the term. Back in 2006 O'Dowd, Gladwell &...
Introduction: Following the shift of SARS-CoV-2 from pandemic to endemic, post COVID syndrome (PCS) joins the list of already known post-acute...
Now published: https://www.mdpi.com/1422-0067/26/8/3610
Downloaded this a few days ago but didn't get chance to look at it - at first glance this looks like quite an interesting review. Skimming through...
Yang et al list a number of ME/CFS studies where various cytokines are reported to be elevated (Table 1, pp3-4), including IFN-gamma, some of...
Some slides in this video (1h04+) from Phair's presentation re IFNα. Also, from this small pilot study:
A few weeks ago I came across a conversation written up in a journal from several years ago that included O'Sullivan - she apparently became...
"Sister of bedbound ME sufferer urges more funding" (BBC): https://www.bbc.com/news/articles/cd9lll0xk1xo
Abstract: Background Shared symptoms and biological abnormalities between post-acute sequelae of SARS-CoV-2 infection (PASC) and myalgic...
"Trial By Error: Suzanne O’Sullivan’s “Psychosomatic” Mis-Diagnoses":...
UK ME/CFS Biobank Steering Group update via MEA: https://meassociation.org.uk/2025/04/update-uk-me-cfs-biobank-steering-group/
PulseToday (publication for GPs) reports on the results:...
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