How to be an Effective Advocate for a Disabled Patient https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for Disabled patients are...
Update from Solve ME about one of their Ramsay Research Grants: A Root Cause for ME/CFS, Long Covid, and Post-Vaccine COVID-19 Syndrome: Damaged...
Minor correction for the agenda link: (it has underscore characters, not dots)...
Good tip! I've set up bridges for both my Bluesky account (so it can be seen by Mastodon users) and my Mastodon account (so it can be seen by...
A recording from the July 2 Solve M.E. webinar "Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness" is now...
Free online support group from Bateman Horne Center: Tuesday, July 30 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland...
Thanks for the heads up! No idea what happened. Probably some weird cut and paste error. (text showed the correct link but the actual URL was...
From the Solve ME mailing list: "The Summer 2024 Edition of The Chronicle is Available Online Now! We're excited to share the newest edition of...
Free online support group from Bateman Horne Center: Tuesday, July 16 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland...
A report from a recent fundraiser where "Team MassME" raised almost $14,000. The link below has photos from the event....
To save some clicks here's the link to the CureME research recruiting page mentioned in the previous message: Join our research: Healthy controls...
It has taken me forever to write this up but I'm finally posting a brief summary of my catheter ablation procedure for SVT which happened on April...
It used to be that Orthostatic Intolerance (OI) was an umbrella term that covered several different diagnoses, including POTS, NMH, and others. So...
I had no OI symptoms before ME/CFS onset. And my OI symptoms were among my very first ME/CFS symptoms. For me, OI symptoms include feeling...
Next up in the Sunday Conversations series: “Improving Pain Care Through Education and Policy” Sunday, June 23 4 p.m. Eastern Time...
Here are a couple of articles about the combination COVID and flu vaccine from Moderna. From The Conversation: Results are looking promising for...
Webinar from Solve M.E. - Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness Tuesday, July 2 1 PM Pacific / 4...
From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS...
Free Lunch & Learn – Virtual Event https://batemanhornecenter.org/event/lunch-learn-virtual-event-52/ Topic: Body of Water, Performance &...
News from #MEAction, from a post on Bluesky by Jaime Seltzer: (line breaks added) "#MEAction’s narrative activity study with Mayo Clinic opens...
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