New fundraiser for OMF, all donations matched dollar for dollar - https://www.omf.ngo/lindas-walkathon/ Donation link:...
#MEAction and Long COVID Justice Issue Press Statement about NIH Failure of Long COVID...
Logged on to twitter/X (still check every week or so) and saw this post, a graph with some unpublished data that was shown during the webinar....
From the San Diego Union Tribune: Opinion: Study shows ‘long COVID’ likely to cause mass misery if treatments can’t be developed...
[moderators, please move if this is the wrong place. maybe it belongs in the vaccine thread?] I'm hoping that folks smarter than I can talk about...
I'm confused by this: Why 2003? Was 2003 the first time someone did a study to show that ME/CFS can happen after infection? That's the Dubbo...
Thanks, Mike! :heart: I've posted a link to Encephalogirl's blog on my mastodon account.
Does substack count as social media? Anyway, I saw this link to Eric Topol's latest substack post on social media (mastodon): Long-Term Long...
Shouldn't there be an age adjustment for this kind of test? Isn't it known that, on average, reaction time slows down as one gets older?
Some news coverage of this study, by NPR's "Goats and Soda" series: A new clue to the reason some people come down with long COVID...
Merged thread The ME/CFS Medical Education Campaign is asking folks to sign an open letter:...
News coverage from The Washington Post: "NIH announces long covid treatment studies with hundreds of patients" Regular link:...
Adding a link for the 25% M.E. Group, a charity in the UK: https://25megroup.org/severe-me-day-2023/
NIH launches long COVID clinical trials through RECOVER Initiative, opening enrollment...
Next Generation Covid Vaccines Update (No 9): Major New Hat in the Ring Plus Important Results By Hilda Bastian...
#MEAction Calls for ME & Long COVID to be Part of COVID-19 Task Force...
Someone posted a link on mastodon (omitting their name for privacy) that avoids the paywall: https://archive.li/sBL8T
That is a very confusing image! :eek::nailbiting: Now I am curious and want to watch it for myself. I confess that I end up skipping most videos.
A reminder that MEAction has a weekly online writing group for people with ME that's called Writing From Our ME Lives. The next session is...
A news item about MEAction adding Body Politic’s advocacy work as a project is now on their website....
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