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  1. MeSci
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    Are healthy blood samples being taken then? (As per photo)
    Post by: MeSci, Jan 11, 2024 in forum: ME/CFS research news
  2. MeSci
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Looks like it's also available on ebay: https://www.ebay.co.uk/sch/i.html?_from=R40&_nkw=biogaia+gastrus&_sacat=0&_blrs=spell_auto_correct
    Post by: MeSci, Jan 10, 2024 in forum: ME/CFS research news
  3. MeSci
    Post

    What can we learn from the Post Office scandal publicity (including TV)?

    I was sacked by Post Office International Telephones in 1978 due to my sick absence (a result of drug addiction which was in turn a result of...
    Post by: MeSci, Jan 9, 2024 in forum: General ME/CFS discussion
  4. MeSci
    Post

    Acupoint massage at Shenque (CV 8) for chronic fatigue syndrome: a randomized controlled trial 2023 Li et al

    "No intervention was delivered in the control group." Rather poor, I think. They could at least have provided something similar.
    Post by: MeSci, Jan 9, 2024 in forum: ME/CFS research
  5. MeSci
    Post

    Trial Report Advancing Therapeutics for Post-Viral ME/CFS and SFN in Long COVID: A 20- Week Sensomotoric Training Intervention, 2023, Ziaja et al

    SFN is apparently Small Fiber Neuropathy (from downloaded PDF of the study).
    Post by: MeSci, Jan 2, 2024 in forum: ME/CFS research
  6. MeSci
    Post

    Review Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview, 2024, Mantle et al.

    I tried Co-Q10 in or before 2014 and couldn't tolerate it. I said on Phoenix Rising: "I couldn't tolerate Co-Q10 even at 100 mg/day. My main...
    Post by: MeSci, Jan 2, 2024 in forum: ME/CFS research
  7. MeSci
    Post

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    Unfortunately the number of people studying psychology has increased dramatically: "Psychology is one of the most popular subjects to study at...
    Post by: MeSci, Jan 1, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. MeSci
    Post

    Post-Exercise Hypotension and Its Mechanisms Differ after Morning and Evening Exercise: A Randomized Crossover Study, 2015, Leandro de Brito

    I often feel relatively well for an hour or two in the morning, then gradually worse until about 1500, when I improve again. I seem to feel...
    Post by: MeSci, Dec 24, 2023 in forum: Orthostatic intolerance
  9. MeSci
    Post

    Roles for retrotransposon insertions in human disease- ME/CFS?

    I was wondering what RIP stood for, so clicked on the first link - it's "retrotransposon insertion polymorphism".
    Post by: MeSci, Dec 20, 2023 in forum: Possible causes and predisposing factor discussion
  10. MeSci
    Post

    Medical assistance in dying when natural death is not reasonably foreseeable, 2023, Wiebe and Kelly

    There was a programme last night on the same subject on BBC Radio 4: https://www.bbc.co.uk/sounds/play/m001t9km Euthanasia is illegal in the UK....
    Post by: MeSci, Dec 15, 2023 in forum: ME/CFS research
  11. MeSci
    Post

    Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023 Rohrhofer et al

    Is MBL mucosal barrier leakage?
    Post by: MeSci, Dec 6, 2023 in forum: ME/CFS research
  12. MeSci
    Post

    Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Jensen, Davis et al

    I also noticed that a contributor was Miranda Lee Dafoe - not sure of her relationship with Janet or Whitney.
    Post by: MeSci, Nov 28, 2023 in forum: ME/CFS research
  13. MeSci
    Post

    Does anyone use/have a parcel box for deliveries?

    I have a plastic waste bin with 'post' written on it (by myself - it has to be rewritten every so often!). It's like this one: [ATTACH] I have...
    Post by: MeSci, Nov 28, 2023 in forum: Home adaptations, mobility and personal care
  14. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $59,880 donated. 92% of total needed (still 2 days to go) https://crowdfund.berkeley.edu/project/40018
    Post by: MeSci, Nov 28, 2023 in forum: Fundraising
  15. MeSci
    Post

    New Study: Gargling with Salt Water May Help Prevent Covid Hospitalization

    I couldn't find, from a quick search of the paper, whether or not patients swallowed the saline. This could be important if in COVID, as in ME,...
    Post by: MeSci, Nov 21, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  16. MeSci
    Post

    Opinions on payments to participants in research

    I too voted "It depends" for the same reasons as others have given. I've just participated in a government-run at-home COVID study, which no...
    Post by: MeSci, Nov 20, 2023 in forum: Trial design including bias, placebo effect
  17. MeSci
    Post

    New relapse of ME after 15 years

    Do you have enough salt, @Woozy?
    Post by: MeSci, Nov 18, 2023 in forum: Neurological/cognitive/vision
  18. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $19,289, 29% of target 19 days left https://crowdfund.berkeley.edu/project/40018
    Post by: MeSci, Nov 11, 2023 in forum: Fundraising
  19. MeSci
    Post

    Bipolar disorder and ME/CFS

    Yes - that's what I meant, @Woozy, - sorry if it wasn't clear.
    Post by: MeSci, Oct 28, 2023 in forum: Neurological/cognitive/vision
  20. MeSci
    Post

    Bipolar disorder and ME/CFS

    Maybe you've been misdiagnosed? It's very common!
    Post by: MeSci, Oct 27, 2023 in forum: Neurological/cognitive/vision
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