Yes, in the past I got emails asking for donations but they have currently tailed off, though recently I did get one of those glossy letters on...
Just as ME/CFS, under current definitions is only defined when the impact reaches a specified level of severity even though it is likely that the...
I was impressed that Hilda and the IAG actually understood the issues much better than I had previously given them credit for.
This is worth repeating especially as it comes from the IAG including Hilda Bastian a founding member of Cochrane. How do we get wider cover of...
If I remember correctly from Cochrane’s letter to the writing group last December, certain rights to act in relation to the draft protocol were...
I agree it seems that once a draft protocol was completed things seem to have started happening behind the scenes. That the psycho behaviour...
I have not yet read everything, but it does feel that the psycho behavioural intervention lobby decided that any new exercise review would...
It is impressive that Mary Dimmock and Todd Davenport are being so outspoken and are still seeking to progress the matter by inviting comments on...
As per @dave30th’s Facebook post, Mary Dimmock and Todd Davenport’s letter to the ME/CFS community: added - sorry about the emojis, I am not...
As per @dave30th’s Facebook post, Mary Dimmock and Todd Davenport’s letter to Cochrane
I had not heard of RSV: I hope all goes well with the vaccination.
I am sure it means the models are actually correct but they just need lots and lots more research funding.
That was certainly my experience when trying to communicate with him about accessing the relevant minutes.
Thank you @Dx Revision Watch for working at gathering the relevant information. Why could the MEA just not share this information straight away...
I agree. Untreated I have a B12 deficiency, and if in deficit B12 reduces fatigue, but when regularly taking B12 I am not in deficit so although...
Such groups as BACME tend to arise when relevant specialist clinical services are relatively new and largely therapist rather than medically...
The professional bodies require individual clinicians to remain up to date via continuing education but would not specify details. Participation...
I assume participation in BACME would be considered part of the work role of staff working in the NHS specialist services, indeed it is likely to...
I wonder if they can meaningfully be said to represent people with ME/CFS given they very much limit any patient participation in the...
As pointed out in a thread on Cochrane, BACME are relying just on the issue of diagnostic criteria but don’t mention the problems with the studies...
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