The advocates for ‘recovery’ seem to be saying, because some people recover everyone should be treated with GET/CBT or some variant of that. The...
My sleep at times does shift even sometimes achieving complete reversal of day and night, usually when I am in a relapse, however this has been...
I feel all we can say is that currently it is looking very much like everyone with ME has abnormalities in their immune system, but we don’t know...
A total non sequitur, but though struggling to remember the full details, some forty plus years ago there was a Scottish writer trying to...
The MEA and Charles Shepherd deserve some defence. They have been active in service of people with ME for quite some time and have played an...
Can we say it goes away as quickly? I know of one person whose loss of smell persisted for at least a year after he acute phase even though in all...
And seeking support from an online community is seen as confirmation of the ‘functional’ or rather ‘dysfunctional’ nature of the condition and a...
In some ways I found life easier when I was more severe and only got out of bed to go to the toilet or eat. I did not have to balance the energy...
Isn’t the problem with a lot of this debate around FND is that we just do not know what the aetiology is, and the evidence for treatments using...
Some quotes: It seems that Scamvougeras is doing what he attacks others of. Can this name be real? It seems to be.
I have had ME for some 30 years but it did not impact on my sense of taste or smell for most of that time. Over the last eight years, when my ME...
A significant proportion, if not a majority, will not have been given basic information on factors that need to be understood to begin self...
I feel it is not fully clear what the authors intended here. Historically in other conditions such as MND (ALS) non oral feeding methods were...
We need lots of studies establishing reliable approaches to this basic biometric recording and meaningful activity monitoring. I have not looked...
In English often ‘baby brain’ is used.
[added - Sorry I could not resist:] Well ‘piobysoscholial’ just about sums up the researchers’ thinking.
I am not commenting in any way on the specifics of this case as I unaware of the detail, however in general nasogastric feeding is not seen as an...
Some people have used myalgic encephalitis instead of encephalomyelitis. I did once read a discussion of the relative merits of each term, but I...
Given the Central Sensitisation questionnaires identify the sensitisation on the basis of researcher beliefs that have no independent verification...
Unfortunately none of the answers gets to the main point, that the research cited in support of Wessely’s views is just plain bad research. Though...
Separate names with a comma.
