A fantastically successful five years, wishing you all the best for the next five and onwards.
I agree, for me, now I have got out of rolling PEM and am not continuously feeling desperately unwell, the measure that seems to mean most is how...
I had no issues with orthostatic intolerance prior to my ME’s onset, and was not aware of it as an issue for some years into my ME. At first some...
This may have been posted elsewhere but this article by Cort Johnson discusses recent research comparing GWI and ME/CFS in relation to exercise...
Yes, my first thought on reading the suggestion that the best response to Long Covid is to scale up existing responses to ME/CFS was please no....
For anyone like me who struggles to read/remember acronyms: The Organization for Economic Cooperation and Development “The Organization for...
When I think of friends and family currently undergoing chemo, their life is taken up with managing their life in the face of cancer. Major life...
Anecdotally we quite often hear about interventions that seems to work at first but then very quickly no longer works. Does this happen often...
Sorry my memories is so bad, but isn’t there the example of a South East Asian country with a high level of ME/CFS that is linked to a particular...
There is Millions Missing France/ Des millions d'oubliés https://millionsmissing.fr/
I have been pondering my comparison of this study to the lottery. Undoubtedly it would be methodologically identical to look at how to solve...
@dave30th has posted on Prof Crawley’s retirement in his Trial by Error Series: Trial By Error: Professor Esther Crawley, Bristol University’s...
The PACE study did do some longer term follow up. If my memory is correct wasn’t there a two year follow up, and didn’t they start the ten year...
There is a difference between prolonged fatigue and fatigue with a delayed onset.
Were doctors not prepared, or were they rather primed to ignore the symptoms of post viral conditions after decades of denial and gaslighting by...
Esther Crawley is still listed on the University of Bristol website (see...
We can live in hope, though retirement from a specific job does not always mean retirement from the field altogether.
@Caroline Struthers, it would be interesting to know how Cochrane responds to complaints on other issues; is their avoidance, prevarication and...
Perhaps winning the lottery would be a better example, as entering a lottery has a real cost and the harder you try to win the greater the cost....
Ellen, welcome and thank you for setting out your information sheets and identifying your supervisor’s details. It is surprising how many...
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