You do see similar debate amongst the deaf community about cochlear implants. I do not know enough to do the issues justice but some see the...
I also got an email recently thanking me for my donation, David said he could not remember if he had previously thanked me via Facebook messenger...
I feel the lack of ‘specialist care’ is a bit of a red herring. The main current problem is the failure of medical services to seriously listen to...
It is interesting that, what others are envisaging as an adrenaline rush, I liken to an endorphin high. My experience is that when I find myself...
False beliefs and unevidenced theories. But yes even if we were ‘malingerers’ why treat us with less compassion than those with other conditions?
This is the crux of the matter, these severely ill patients are suffering and even dying because their care is based on false beliefs and...
I was able to access the article, but it presumably this is just one of the few free articles.
I think we would be aware of a 10% prevelance in our local communities/families.
Sorry I seem to be struggling cognitively today, the draft for this thread disappeared several times and then posted before I was finished. Also I...
'NHS doctors brushed off our condition as menopause – what we suffer from is far worse'...
This may only be available to people in the UK.
Are you referring to the BBC’s podcast The Life Scientific see https://www.bbc.co.uk/programmes/m0020xrk Note It is free to listen to, but you do...
Whatever the name, it will come to be used as code for psychogenic.
I think you are correct @Trish, but I also took the implication that they felt anyone writing such a paper should automatically push the...
I have just done the survey, there were parts I struggled to respond accurately to as I am covering thirty years of ME. Also I was unsure how to...
I understand the parents/carers wanting to write this letter, however what I saw as important in @Jonathan Edwards paper was that it was...
My feeling is that some people are lucky to experience some spontaneous improvement and some are not. Avoiding crashes may create the best...
Do we see PEM in these patients with fatigue that is diagnosed as ‘CFS’ post sarcoidosis or are seeing a confusion between the symptom chronic...
At times in science we see bright but over confident individuals produce a theory that is plausible on the basis of some evidence, that changes...
As someone who has had ME for thirty years, two and a half years does not very seem long-term to me.
Separate names with a comma.
