Does any one else find this chilling? Given we are looking at a neurodivergent population can we know that what is being labelled ’FND’ here...
An excellent article, Claire Every is real developing a good understanding of ME, but will the people that need to read this ever see it or if the...
I have never understood how believers of the deconditioning model think it can explain the variation within ME. I have a relapsing and remitting...
It is a decade since getting a bus has been an option for me.
The Baxter et al research by it nature only dealt with patients who survived the ordeal of health service disbelief and inertia, how many people...
Such a powerful and compelling account. Also crying.
Do you mean Leeds?
In theory the individual questions are irrelevant, what matters is how your answers compare to other people completing the same questionnaire. In...
‘Feeling better’ is no doubt a good thing, and I would be happy if I could feel better all the time, but that is not enough. I could ‘feel better’...
I thought I had previously read the Leeds inpatient service had shut, however it seems that it is still there (see...
Abstract
I just noticed that Prof Crawley is also no longer listed as a medical advisor to the Sussex and Kent ME/CFS Society. How will they survive with...
Also as has been already pointed out, malnutrition and dehydration potentially cause all sorts of problems and it is unclear until they are...
I couldn’t face reading this, but feel it is important to note we have no idea why some people recover and some don’t, also we have no idea what...
I have no idea about current waiting lists, but when I provided a community service we tried to see urgent swallowing referrals the same or the...
I assume Speech & Language Therapist. Our role would be in the assessment, management and if relevant treatment of the oral and pharyngeal stages...
Is this something that can be added to the complaints about the original paper pushing effort preference as the main explanation for ME/CFS, if Dr...
Missing Millions France share the following French article on their Facebook page Un hôpital anglais dans le collimateur de la police après la...
I have not read the article, but I wonder if it is ever attempted to distinguish between avoidance because you are afraid and avoidance based on a...
Thank you @Eleanor for your clarity.
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