Yes. Ideally people would be supported to an appropriate level to live with their ME as well as they could, such that any request for assisted...
We have the example of Canada that illustrates some of the complexities: in Canada generally people with ME are unable to claim appropriate...
Was the issue that ‘this would include people within the condition, if diagnosed on the basis of these questionnaire responses, that do not have...
A relative was very ill over a couple of years. The doctors thought he had some sort of infection in his leg but it did not respond to...
Why do so many researchers/clinicians feel obliged to overstate what we currently know? Why can’t they just say we don’t know the aetiology, but...
I agree I too have generally been over optimistic in relation to my ME. I have always assumed any deterioration is transient and that any...
I think the problem is that the UK specialist clinics and BACME genuinely believe they are helping people and that the false positivity of...
I have forgotten my statistics, but if someone said that a family where everyone was either four foot tall or eight foot tall was statistically...
A great result, thank you to @Trish and everyone involved for the work put into this. Though in an ideal world they would have not needed this...
Isn’t part of the problem with CBT as often currently formulated that it was seized upon as part of the process model of health care? You define...
Thank you this link got me through.
I am struggling with the link, tried several browsers
My concern is that it is only meaningful for the very mild who are the only people with ME served by most specialist services, for every one else...
Sorry my brain is not currently able to process this thread, but I do agree that there is a strong chance that to understand the aetiology of ME...
@PhysiosforME illustrate that Physios can get (ie understand) ME and what their role can be. [sorry cross posted with @Trish ]
As always, a well thought through blog post with some very important points.
More of the same. So we still have no idea which of our complaints they are investigating and which they are not. This tells us nothing about...
Thank you @tuppence, an important perspective.
Thank you to the Committee and everyone for persisting in this head butting of the brick wall that is Cochrane. After all these years of them...
Colleen Steckel provides a useful overview of information and articles relating to the inquest, see Inquest into death of Maeve Boothby O’Neill...
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