Especially if you consider the iller some one is the less likely they are to continue in the study. Without clear evidence (sorry haven’t checked...
A vital issue for me is the importance of accurate and relevant information that is NICE compliant put out by the NHS and how to ensure there is...
Because we don’t know how many of us looking at this don’t recognise a specific trigger or how many with gradual onset if the longer the gap...
It is good seeing lots of new comments too.
My onset was fairly straight forward in that I had glandular fever (EBV virus confirmed) and it is not possible to say when the acute condition...
The MEA was monitoring such as job adverts and information put out from specialist services, contacting the relevant trusts when they identified...
Hear, hear!
Such a clearly written piece. Thank you for sharing it.
Personally I worry that we risk wasting too much advocacy effort by endless debates on the name of our condition. Until we understand the...
Lawyers will be able to be more informative, but I suspect that the coroner has a limited number of choices, as well as requiring a high evidence...
How do we get people to understand this key point, when so many of even those that we see as positive advocates for ME/CFS don’t get this? How do...
Would it be worth replying, asking if they are addressing all our complaints, given they refer to ‘complaint’ in the singular, or if not which are...
Thank you.
(In the UK). I had already booked in with my GP for the flue jab, but had thought I wasn’t eligible for the Covid jab. However I got an email...
Thank you @Trish.
Do we know when the ‘writing group’ submitted their draft ‘protocol’ to Cochrane in preparation for consultation? Given the writing group were...
Given Hilda’s personal Blog page on this is obviously failing as a meaningful channel of communication, with no indication that information there...
It is not uncommon for me in PEM to have both nausea and hunger pangs. I both want to eat and don’t want to eat at the same time. Definitely not...
I don’t know if it is still the case, but in Sheffield consultant referrals for ME/CFS were sent to ID. However when I was seen by them some...
Welcome @Karen Hargrave and thank you for your advocacy work and for commenting here.
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