:)
My comment on the SF36 Physical function, copied from another thread: The SF36 is very susceptible to priming i.e. a change in your frame of...
Here's our thread on SF-36: What do people think of SF-36? There's a link there to Graham's video.
The SF36 is very susceptible to priming i.e. a change in your frame of reference for people with ME/CFS. I think Graham's excellent video about...
Thanks everyone. We'll get on and publish the French version.
Yes, I wondered that. I wrote a letter to the RNZCGP in 2023, and, despite several followups and communications with the personal assistant to...
Discussion about the utility of the six minute walking test in ME/CFS has been moved to its own thread: Six minute walking test
Perhaps what we need is some rich person to set up a 'Journal of the Null Result', that actually pays researchers who do great quality research on...
My question would be, what diseases were the subject of those clinical trials? People who aren't constrained when walking for 6 minutes won't be...
Discussion of whether researchers do or don't come to this forum and why is off-topic for this thread; further posting on this will be deleted....
I'm not clear on what has happened there. The RNZCGP has been like a brick wall, in terms of the Lighting Process. They have allowed Bruce...
I assume that the reason why people in Cochrane don't see a problem with the review or believe reports of harm is partly because they believe that...
Trials we cannot trust: investigating their impact on systematic reviews and clinical guidelines in spinal pain, 2023, O'connell et al That study...
Lipid storage myopathy associated with sertraline is an acquired mitochondrial disorder with respiratory chain deficiency, 2024, Hedberg-Oldfors+...
Here's our thread on a trial on Pain Reprocessing Therapy co-authored by Alan Gordon: Effect of Pain Reprocessing Therapy vs Placebo and Usual...
Fortunately, it seems that you were not put off from joining the forum after all. So that we don't take this thread off-topic, perhaps you would...
It depends on how you define BPS. If you define it as biological, psychological and social factors interacting, and that medical treatment of a...
There's a thread on the idea of a creation of an ME/CFS research charter that has some overlap with what you are talking about Making a 'Charter...
Simon, I think you added that last bit about the fitness test after I started writing a response. So, if a fitness test showed no improvement,...
Did it though? Here are the PACE trial results Group: Baseline distance (m): 52 week distance (m) Adaptive Pacing: 314: 334 CBT: 333: 354 GET:...
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