But she can help to put pressure on the authorities that are responsible for advancing research. DecodeME aside, those authorities have failed us...
Francis Ryan on Xitter: “Miranda Hart’s new memoir on chronic illness seems very well intentioned but this pseudoscience is worrying. If you’re...
Do we know where she was tested with what type of test? My understanding is that there are private clinics where a significant percentage of...
What has happened to Stephen Holgate? My recollection is that Sonya got on well with him. Is there anything useful that she could persuade him to...
I think I’ve said this before but maybe worth repeating. What I consider to be me ME/CFS symptoms started suddenly when I had an accurate...
I agree that the doctors knew how to keep Maeve alive. What I don’t know is whether all the ME/CFS deaths have been preventable or not. Emily...
No, that was a faux pas. Quite different.
Latest update from the campaign: https://www.thereforme.uk/p/campaign-update-8-the-media-is-asking
I’m confused. The Times report says: “However, the coroner’s recommendations are not legally enforceable and at a hearing last month Archer said...
I can’t remember what has been discussed on this thread already so I apologise if this is a repeat but a thought occurs to me: Samples were taken...
I’m remembering the “There is a way” text to Gillian Leng, suggesting she kept the new NICE gl recommendations but tampered with the evidence...
Letter in yesterday’s Times from Ilora Finlay & Peter Barry:...
I asked my (helpful) GP to change my notes to say that I have ME/CFS instead of CFS. She said the only options on her system were CFS or ME, so...
Long Thread by Binita Kane on Xitter: Full transcript of BK’s thread: For anyone interested in the pathophysiology of MECFS there’s a nice...
Binita has posted a long thread on X/Twitter: I’ve posted the full Xitter thread on the S4ME thread about the 2021 paper she references:...
Cont… Edit: full transcript of BK’s thread: For anyone interested in the pathophysiology of MECFS there’s a nice infographic here from this...
Binita Kane has posted a thread on this 2021 paper on X/Twitter. cont…
X/Twitter exchange between Dom Salisbury, Todd Davenport, Binita Kane and Sarah Boothby: DS: I don't think we know enough about ME to say with...
And the first thing he will probably do is point out all the inaccuracies and/or lack of evidence supporting claims made by anti-BPS doctors at...
Binita Kane, who is now an ambassador for #ThereForME, was interviewed on BBC Breakfast this morning following part 2 of Maeve’s inquest....
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