I think multiple things can be true at the same time: Ideally, we need more very good researchers in the field of ME/CFS. The lack of funding for...
It’s good that things like this is called out. And not very good that it wasn’t caught prior to publication of the first piece. A good reminder...
Yup!
I have not checked the quality of the studies, but based on the descriptions they are not suitable for determining the prevalence of ME/CFS in LC...
This is what happened in Norway when we asked for a national competency service. Actually, it was worse because they actively work to undermine...
Studies on self-selecting participants or patients at specialist clinics can’t be used to estimate the prevalence of anything. I don’t understand...
Maybe try something like «always pronounce the individual letters of words that are written with only capital letters?»
Thank you for sharing!
But those studies are not generalisable, and we can’t pretend they are just because it fits the narrative of «ME/CFS is a massive societal issue...
@Adrian regarding the study on prevalence of ME/CFS in LC patients: the study that found 58 % recruited patients from SoMe LC groups. That’s a...
Thread split from [UK] A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform about a proposal that mentioned that...
I don’t mind negative results and that’s not what I meant to imply by «wasted». In my mind, resources are «wasted» if they didn’t have a chance at...
I understand why they want to mention LC, but saying that 50 % with LC also has ME/CFS is simply wrong. Those numbers are from reports from...
@Adrian what stops the money from being wasted like what they did in the US for covid?
I don’t have much context here. What are they actually proposing? They could have done without the last part.
As long as you say that that’s the population you want to study, it’s fine. I might have mistakenly interpreted it as saying that PEM is caused...
I clicked and fully expected to read a hype piece about AI, but I was pleasantly surprised!
The issue with defining bias in AI as a deviation from «the real world» is that it doesn’t tell you anything about the source of the bias. It...
Wow, that is really bad!
Separate names with a comma.
