In real life I would never tell anyone like that that they didn’t have ME/CFS during the good patches. But if ME/CFS is strictly defined as a...
It doesn’t measure PEM. It measures functional capacity. FC can be a proxy for some aspects of PEM, but PEM isn’t the purpose. I feel like you’re...
It doesn’t apply to ME/CFS as its currently defined because you can’t have ME/CFS if you don’t have the symptoms. In theory, there might be some...
I don’t think any tool can measure all aspects of something as diverse and extensive as ME/CFS. FUNCAP measures the most debilitating aspect:...
You can have cancer without it causing any noticeable symptoms. I had to look it up, and this is how ‘symptom’ is defined in a medical context...
Are there any PROMs for other conditions that have more nuance than FUNCAP for ME/CFS?
I wonder what the BPS brigade would say about that take!
The most important thing about a test might be that big pharma would be willing to get involved if they have a biomarker to measure their drugs...
A test will not change that because they believe that the mind body interaction can cause anything to happen. So the mind body interaction caused...
That the symptoms and disability we experience are real. The cause or causes do not matter for the ‘realness’ of that.
IMO, we don’t need a test to prove that ME/CFS is real. But it would be very helpful to have one for a lot of reasons. So we definitely should...
This has already been done, it didn’t really show anything you wouldn’t be able to find by spending a bit of time in a Facebook group etc....
I also notice that my eating rythm gets messed up.
[IMG] I don’t understand the 15 day data point for blue (probiotics). And what happened to the error bars? Edit: it’s figure 2.
That’s a very important ethical consideration!
The product page: https://www.ab21probiotic.com/
[IMG] [IMG]
This is an interesting inclusion!
Or that enough people have tried it in the same time period as a natural positive fluctuation of their illness. Or that people report that it...
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