Fair call. :thumbsup:
"explanatory power" That term doesn't mean what they think it means.
Count me among those very sceptical of the notion of a baseline. I regard that concept is not only unrealistic and irrelevant, but as being...
THIS! Don't give me false hope, especially if based on pseudo-science and hand-waving. That is the worst possible response. Exactly what patients...
No argument there. I didn't mean to be critical of the patient reps, just of the profession's obsession with the 'fatigue' construct.
"fatigue disorders" :grumpy:
Real mystery why people who experience serious deterioration in their health when they do certain things would want to avoid doing those things....
In case anybody does not know, Children's Health Defense (Wikipedia article) is the organisation JFK Jr. helped set up and run to promote...
:thumbup:
There is a blanket ban on blood donation for those with ME/CFS in Australia, which I support on precautionary grounds. I have an uncommon blood...
Good as far as it goes, and credit to the authors for both asking the question and accepting the implications of the answer. What is the bet...
We recognise that care for people with ME/CFS has varied widely, and in the worst cases has left some people feeling that their illness is not...
Also, it is not just a simple quantitative improvement (less ME), it feels qualitatively different too.
Can't add anything, or even offer any helpful suggestions. Just thinking of all those caught up in this shitfest, and wishing the best for you....
30mg is correct. IIRC, in Europe they use the comma instead of the period for the decimal point, to avoid confusion because the period can also...
WTF? o_O Feeling dizzy and lightheaded after a physical blow to the head is psychosomatic?
Thanks for asking. The only low reading I am getting is ferritin, but very low. The other iron measures seem more-or-less okay, including no...
Privacy is the most underrated of rights and protections.
I typically feel better in the early stages of a cold or flu, before it hit full strength. Usually only for 24 hours or so. I noticed that before...
There is no 'feel' about it. The disbelief and mistreatment is very real and pernicious. It is not merely dismissive and unsupportive. It has...
Separate names with a comma.
