Some can. I have a normal care agency. It’s just run by a nurse but the care team do my tube feeding, meds and order my meds. And there is of...
Given we’ve had an APPG since 1998 With limited success - primarily 2 general reports published saying similar things ~ 20 years apart - just...
ok but that does not equally mean that meeting all the research needs of the long covid community meets all the research needs of the ME/CFS...
Nath Is making it clear NIH has essentially replaced researching ME/CFS with long covid, which He bizarrely describes as much more severe. Who...
RaisIng large sums and showing the reality of very severe ME and the unacceptability of abandoning these sufferers , as They did with ME, to...
America has some good guidance written 2023 by clinicians with experience with m.e , that is not so much relying on 100% gold standard evidence...
It’s talking about leading to a bigger NIHR study 25/26. I think there’s little there that could not have been done ten / twenty years ago,...
Haven’t the 3 basic models proposed for ME, & especially in the UK, been psychogenic (hysteria etc - dismiss it entirely) , biopsychosocial &...
To give context here For those who are not severe /Acutely aware of what people are facing in hospitals, this was written by the mother of Emily...
Aren’t we trying to reframe it as a biomedical model va the biopsychosocial? Rather than leaving it an empty space.
I don’t know but his current description at Exeter says he “participates“ in the chronic fatigue service but he is clinical lead for the long...
NIH funding plans for non covid ME/CFS https://www.healthrising.org/blog/2024/05/13/nih-chronic-fatigue-syndrome-whittemore/
An early DS interview when he became the face of long-covid. Long COVID – we’ve been here before...
I disagree partly, whilst for diagnosis I think that there is requirement for life to be significantly limited, as people improve, as some do,...
I see from twitter this has already been dealt with. No need to contribute.
These are examples of what NIHR were previously funding for ME/CFS (from searching s4ME forum) Paediatric chronic fatigue syndrome patients’ and...
I think that with The NIHR specifically, they have been having a two tier approach. Up until 2020, afaia the bulk of NIHR CFS funding was going to...
hi Aaron. How have you gotten on with this?
Thanks, that’s still constitutes government funding though?
MRC are funding the LOCOME project...
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