Yes, totally agree, it is a travesty. Competent medical (and psychological care for those who do need it) is all a pwME is asking for. I do not...
@Hutan. I agree that EEG specificity and sensitivity can be problematic but usually the pwEpilepsy have had previous EEG’s that show their...
Functional tic disorders can become a problematic diagnosis when the diagnosis is made by people with inadequate training or experience. Usually...
I have seen cases of Functional Neurological Disorder. I have helped care for people with FND in the mental health sector. It is a very...
She did med school in Auckland, NZ. She got a Bachelor of Human Biology, the undergraduate degree at that university, but failed to pass the...
I have an Apple Watch which measures many Health metrics, some of course not normalised to ME (there have been a few studies on HRV in ME). It...
I had lots of testing for viruses (30 years ago), like CMV (negative), EBV (positive antibodies -showing past infection like a large proportion of...
Are they hoping to change the life/work balance for nursing staff? So their hope for this research is to recommend some very judgemental...
She says she is a Doctor of Pharmacy and tweets are not medical advice (but she is not likely to be a medical doctor as one would state your...
I have had these symptoms with my ME, they can be troubling at times and improve considerably with regular or intermittent use of Flixonase nasal...
Yep, you make a choice, where and what you spend your time on….
It’s always a worry when GP’s start doing psychological research and publishing it in the BMJ/GP edition. Though I am sure they have a few...
Yes, probably. There is also specific comorbidities like POTS annd LC to consider and people with diagnosable Orthostatic Hypotension etc etc....
I have only started pacing with a HR/HRV monitor for the last 6 months to a year as I decided to reconnect with the finer points of ME science...
Atrial tachycardia is a supraventricular tachycardia and is explained here...
[MEDIA] Gez Medinger - guest speaker at a LC and CFS (hmmh no ME/CFS) summit…read the info on people presenting and topics, (just to satisfy my...
Regardless of political views local to one’s country of origin. Having experience with my own MC and how it’s processes work to uphold...
Oh dear, we must have upset PG again and he needs to do some wolf whistling to the world. I wonder how his quasi-retirement from Cochrane is...
Looks good and have signed up. I have listened to podcasts by the founders and writers of the Long Covid Survival Guide and although I haven’t...
Good paper, intellectual exercise for epidemiologists but also calling out homeopathy as a pseudoscience. I know that the current head of state...
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