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  1. Simon M
    Post

    Large scale phenotyping of long COVID inflammation reveals mechanistic subtypes of disease, 2023, Liew et al.

    I'm not up pon LC research, but I wonder about the relevance of this to ME, or even most LC. It only looks at people hospitalised with Covid, and...
    Post by: Simon M, Apr 9, 2024 in forum: Long Covid research
  2. Simon M
    Post

    NIH study - where to start?

    Hi, Janna, and welcome to the forum. Look forward to reading your blog.
    Post by: Simon M, Mar 29, 2024 in forum: ME/CFS research
  3. Simon M
    Post

    Epstein Barr Virus podcast from The Guardian

    Not to mention ME. 17% of DecodeME participants report their illness began with GF.
    Post by: Simon M, Mar 28, 2024 in forum: General ME/CFS news
  4. Simon M
    Post

    2024: USA NIH NINDS ME/CFS Research Roadmap - now published

    Thanks @Hutan , Do you just submit the suggestion or A rationale as well?
    Post by: Simon M, Mar 13, 2024 in forum: Advocacy Projects and Campaigns
  5. Simon M
    Post

    Open Medicine Foundation (OMF)

    >>Danielle has an extensive research background spanning various institutions and projects. At Leidos, she worked on the NIH’s All of Us Research...
    Post by: Simon M, Mar 13, 2024 in forum: News from organisations
  6. Simon M
    Post

    Trial Report Mixed methods system for the assessment of post-exertional malaise in myalgic encephalomyelitis/CFS: an exploratory study, 2024, Stussman +

    That is too short a time for most people (maybe it's faster after max exertion).
    Post by: Simon M, Mar 13, 2024 in forum: ME/CFS research
  7. Simon M
    Post

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    This is great, thanks. Can you tell us the R and p values (if p values are appropriate comparing between studies)
    Post by: Simon M, Mar 13, 2024 in forum: ME/CFS research
  8. Simon M
    Post

    Pre-Illness Data reveals Differences in Multiple Metabolites and Metabolic Pathways in Those Who Do and Do Not Recover from IM, 2022, Jason et al

    The pre-illness approach is great. The weird categorisation is worrying because it makes no sense, which raises the possibility it is post hoc,...
    Post by: Simon M, Mar 6, 2024 in forum: ME/CFS research
  9. Simon M
    Post

    $720,000 grants to 2 La Trobe University researchers from the Mason Foundation for ME and long Covid research

    Well done on landing this and setting things up so well for a good study. Look forward to seeing the resutls in due course.
    Post by: Simon M, Mar 6, 2024 in forum: ME/CFS research news
  10. Simon M
    Post

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    That's very interesting, thanks for sharing. I'd also say that any effect of sex hormones is most likely seen on risk (whether or not you get...
    Post by: Simon M, Mar 5, 2024 in forum: ME/CFS research
  11. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    A bit of listening from the NIH would go a long way, certainly on the EEfRT a) they got the EEfRT "effort preference" research wrong. b) the term...
    Post by: Simon M, Mar 4, 2024 in forum: ME/CFS research
  12. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I think it might be – based on how authors responded to letters about the Pace trial and similar. Those criticised ignore all the strong points...
    Post by: Simon M, Mar 3, 2024 in forum: ME/CFS research
  13. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I think it is a great example of the power of the crowd, even when it is a crowd as ill as this one. Yes - and the graphs! Thank you for the...
    Post by: Simon M, Mar 2, 2024 in forum: ME/CFS research
  14. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Brilliant analysis and data presentation from @Murph. Perhaps just as important, these patients keep trying despite many near-miss failures -...
    Post by: Simon M, Mar 2, 2024 in forum: ME/CFS research
  15. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Thank you for this analysis. I've always had a thing for making graphs easy to understand and would like to make a couple of suggestions (without...
    Post by: Simon M, Mar 1, 2024 in forum: ME/CFS research
  16. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Thanks for running the GEEs - and yes, I completely agree. I think the participant exclusion is flawed but not that relevant because the 65%...
    Post by: Simon M, Mar 1, 2024 in forum: ME/CFS research
  17. Simon M
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I've not read this, but it might answer some of the questions being raised about EEfRT and how it was used Statistical analysis of effort...
    Post by: Simon M, Feb 29, 2024 in forum: ME/CFS research
  18. Simon M
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    “His research protocols focus on deeply phenotyping persons with disorders characterized by aversive symptoms that develop after exposures, such...
    Post by: Simon M, Feb 28, 2024 in forum: ME/CFS research
  19. Simon M
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Thank you for doing this, the results are reassuring. Are you able to share the data?
    Post by: Simon M, Feb 28, 2024 in forum: ME/CFS research
  20. Simon M
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Thank you, @Paddler for taking part in the study and for sharing your experience. What an ordeal. As ou say, their hypothesising has drawn...
    Post by: Simon M, Feb 28, 2024 in forum: ME/CFS research
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