Probably not needed for most people here, but here's a lay summary I wrote for te MEA website. Research: Myalgic Encephalomyelitis is clear to see...
Thanks to @Hutan for splitting off this thread on sex ratios/female predominance. I was going to focus on the other big studies, but wanted to...
These three researchers Have done great work including their recent pan- European patient survey of Oval 11,000 people. Apart from looking at...
I've reread that paper. It's interesting and has some notable ME authors: Lucinda Bateman, Charles Lapp and Peter Rowe. However, there are issues...
I've just got around to posting about Veronica's Hamlet poem on Twitter. It's good to see it got some traction there: [MEDIA]
Copied post Bakken: this is the lowest of studies I trust. DecodeME is likely better as bigger and broader recruitment (doesn't need GP referral)...
Bakken: this is the lowest of studies I trust. DecodeME is likely better as bigger and broader recruitment (doesn't need GP referral) at 83%...
The severity data comes from DecodeME. (Sex ratio has been discussed elsewhere. I would be very interested to see any good papers showing a...
I'm no expert either, and I hope Chris Ponting will reply later. But my take is slightly different to yours. Of course, big samples mean it’s...
It's great to see new people getting involved in ME - this is exactly what the field needs, and hopefully there will be more new faces - and more...
I think it’s very important as perhaps the final nail in the coffin of the deconditioning hypothesis. Inactivity accounted for very little of the...
Thanks for pointing that out. :) It's what they explicitly state and published in the main biggest GET papers is the basis for GET (and the...
The Pace authors can't do that: they nailed their colours to the deconditioning-causes-symptoms mast. Likewise Fine trial authors. And thanks...
Helpfully, the Pace trial spells out the central role of deconditioning in their theory of why GET works. It seems pretty clear that if...
I’ve spent nearly a year in total living alongside people who must be even more deconditioned than I am because of severe physical difficulties...
You are welcome ;-). ADDED: there was also some great work by a user called biophile (who is well known for some other work he did under his own...
If you read the BACME reports for 2019 and 2023, https://bacme.info/library/surveys/Surveys & Research Archives - BACME the biggest complaint of...
Thanks for all the great analysis (as usual). And yes, I think the Rituximab open label study showed at least as big an effect, while the blinded...
What can we conclude about possible PEM in other illnesses? It looks to me that a significant proportion of people with MS and PPS have symptoms...
MS has very distinct clinical signs, especially with MRI scans (I don't know about PPS). The prevalence of ME is about 0.5%, yet 29% of people...
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