This is an excellent critique. You can sense the authors frustration that EUROMENE had already published a protocol exactly for doing this kind of...
I've only just started reading this, but what an astonishing study. On the surface it is great methodology, covers the real world beyond clinical...
precisely. what the CDC graph shows is that the rate for people in their mid 60s is much higher than those in their late 40s. We look at the...
Unfortunately, that is not a reliable way to find true cases: 1. It's likely to bring in cases of people whoe were told they had chronic fatigue,...
This is helpful, and I like the "hours with feet on the floor" question. But without knowing severity, it's hard to judge the relative important...
That is an interesting feature. My starting point is that not only are cognitive problems my most disabling symptom (in terms of what I want to...
Great idea. I think it's a fascinating study, but too small, and I'm not sure the stats are totally sound due to multiple comparisons. Curiously,...
Thanks for expanding on PVFS vs ME/CFS. Dubbo looked at changes in symptom pattern using the SPHERE questionnaire that captures psychological...
@Jonathan Edwards, it's up to you if you reply, but I wanted to check you had seen this post (quoting the most relevant bit). Thanks
I appreciate that. At the same time, I had the impression you were were describing the concept of something by focusing on the symptoms that you...
I think that is a fair point, given lack of hard evidence of high levels of OI. Though I like the concept of orthostatic intolerance when it is...
PVF(S) & ME/CFS from the paper @Jonathan Edwards "The concept of ME/CFS is not focused on a specific agent... What remains unclear is to what...
It would help to get a representative sample: maybe the MEA could help get a bigger one. I think we would need to look at hours recumbent (or...
I think it would be very valuable for this to be published in a well-read medical journal (i don't know about Queios). It's the kind of clear...
I’ve always been struck by how this was a strange and pretty common symptom. It doesn’t seem important in its own right, but maybe it tells us...
Apologies, I phrased that rather badly. I certainly didn’t mean to dismiss that approach. But I do think it would make sense to wait until we see...
Unfortunately, going down that route is of starting observations and hypothesis hasn’t got us very far. We have the prospect of DecodeME reporting...
Thinking about it, I’m not sure we’ve been very good at doing that as a community. The push for a big GWAS (Partly fuelled by opposition to mega)...
Don't forget they did a lot of challenging of the evidence review before NICE made and published its new guidelines. Its head of evidence review...
"Members of the CFS group must have met both of two criteria: 1) they must have answered “Yes” to the 2019 UKBB pain supplement questionnaire...
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