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  1. Simon M
    Post

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Prevalence: Jason versus Crawley I have gone through the Esther Crawley paper and its findings are very much in line with the Lenny Jason one,...
    Post by: Simon M, Feb 12, 2020 in forum: ME/CFS research news
  2. Simon M
    Post

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Thanks for the blooper spots! Migraines for the last 4 days so just pushed this out and appreciate someone helping mop up. Very interesting...
    Post by: Simon M, Feb 4, 2020 in forum: ME/CFS research news
  3. Simon M
    Thread

    Leonard Jason research finds that many young people have ME/CFS (Simon M blog)

    Leonard Jason research finds that many young people have ME/CFS [ATTACH] A new study finds that 0.75%, or 1 in 130 young people, have ME.CFS....
    Thread by: Simon M, Feb 4, 2020, 55 replies, in forum: ME/CFS research news
  4. Simon M
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    A simpler version (not in the paper): 295/10,000 = 3% of youths screened were possible cases of ME/CFS 42/165* = 25% of possible cases were...
    Post by: Simon M, Feb 1, 2020 in forum: ME/CFS research news
  5. Simon M
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Thanks for all the helpful comments. I will just recap some of the strengths of the study, which I think addresses some of the issues here, but...
    Post by: Simon M, Jan 29, 2020 in forum: ME/CFS research news
  6. Simon M
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I realise that everyone might be losing interest in the study, but I would really appreciate people's thought on why prevalence for children in...
    Post by: Simon M, Jan 28, 2020 in forum: ME/CFS research news
  7. Simon M
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    Thank you, @Tom Kindlon, this is a very interesting approach and a fine bit of work. It does seem to lay to rest the idea that “the experts have...
    Post by: Simon M, Jan 27, 2020 in forum: General ME/CFS news
  8. Simon M
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Comparison of phone contact/response rate for the new Jason study versus earlier CDC study Summary (UPDATED): the earlier CDC study was carried...
    Post by: Simon M, Jan 25, 2020 in forum: ME/CFS research news
  9. Simon M
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Thanks for the usual smart analysis. 1. Good point about people who know someone with fatigue being more likely to take part in the study. For...
    Post by: Simon M, Jan 24, 2020 in forum: ME/CFS research news
  10. Simon M
    Post

    Comprehensive Circulatory Metabolomics in ME/CFS Reveals Disrupted Metabolism of Acyl Lipids and Steroids: Levine,Hanson et al 2020

    It is an interesting finding, but it is from this particular study. I don't think it's a consistent finding across the many studies we've seen to...
    Post by: Simon M, Jan 23, 2020 in forum: ME/CFS research
  11. Simon M
    Post

    Comprehensive Circulatory Metabolomics in ME/CFS Reveals Disrupted Metabolism of Acyl Lipids and Steroids: Levine,Hanson et al 2020

    I am relying mainly on the comments above (thank you) and the authors’ conclusion, but the paper seems to be saying that looking at the blood...
    Post by: Simon M, Jan 20, 2020 in forum: ME/CFS research
  12. Simon M
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Seriously, how do you dig out this information, let alone grapple with it? It is so complex/mind-numbing, yet also so important. Thanks for your...
    Post by: Simon M, Jan 20, 2020 in forum: Disease coding
  13. Simon M
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I’d like to add my thanks and congratulations + DX. This is an incredible achievement especially since some people at WHO clearly wanted ME/CFS to...
    Post by: Simon M, Jan 20, 2020 in forum: Disease coding
  14. Simon M
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    7,500 people have now signed up to support the study. Thanks, everyone. Still time to join in - closes end of Tuesday 21st, just over 48 hours...
    Post by: Simon M, Jan 19, 2020 in forum: ME/CFS research news
  15. Simon M
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    [MEDIA] In case the tweet isn’t showing for anyone, the signup total is now just over 6000. That’s pretty impressive. Getting close to 10,000...
    Post by: Simon M, Jan 13, 2020 in forum: ME/CFS research news
  16. Simon M
    Post

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Questionnaire conundrum Good discussion on the merits and pitfalls of optional questionnaires I would add to that extensive experience/results...
    Post by: Simon M, Jan 9, 2020 in forum: ME/CFS research news
  17. Simon M
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    Thanks for the blog post likes and thanks for sparing my blushes by not pointing out that I had used a picture of DNA from a parallel universe....
    Post by: Simon M, Jan 9, 2020 in forum: ME/CFS research news
  18. Simon M
    Post

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    I expect many people here have already signed up, but if you like the blog, please share widely. I think the figure is approaching 5k sign-ups....
    Post by: Simon M, Jan 8, 2020 in forum: ME/CFS research news
  19. Simon M
    Thread

    Sign up! Your support could help win funding for a game-changing ME/CFS study (Simon M blog)

    Sign up! Your support could help win funding for a game-changing ME/CFS study January 8, 2020 Simon McGrath Comments 0 Comment [ATTACH]...
    Thread by: Simon M, Jan 8, 2020, 16 replies, in forum: ME/CFS research news
  20. Simon M
    Post

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Thanks, and thanks for the helpful questioning of this estimate of the patient community. In terms of estimating the patient community, the key...
    Post by: Simon M, Jan 3, 2020 in forum: ME/CFS research news
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