I had 2 xAZ and 1 Pf. I reacted badly to both types of vaccine and also made few antibodies to covid from the AZ vaccine. I was sent to a major...
I attended a weekly tai chi and qi gong class for 10 years prior to having ME. I loved it. Remembering the forms was intellectually challenging...
@Mij Hope your severe pain does not recur and you are over it quickly : and thank you for the tip about Acyclovir. I took it for ME for a while...
Very glad that you are recovering well @Mij and that your illness was mild. My mother had it when in her 80s and only knew about it because the...
Great video especially if you have OI as I do. I intend to buy Peter Rowe's book ' Orthostatic Intolerance'. He links OI to hypermobility which I...
I wonder if you can also take into account that people's skills at using the internet vary considerably which will impact how and what use they...
There was an article in the Times last Thursday Jan 16th which contained a short paragraph referring to Maeve's inquest. " A Devon coroner...
I have still not restarted arip for specific reasons not related to it and probably won't for a while. I wanted to report on the persistence of...
This looks amazing. £7876.54 has been raised for ME Research UK through this scheme according to its blurb. I can't get out to shops so buy online...
I was admitted to hospital and had a heart examination under anaesthesia. The anaesthetist visited me the day before and was receptive. I would...
Briefly because I have other treatments currently in progress, most of the above apply to me apart from my husband and daughter raising money via...
I knew my CRP had occasionally been logged as abnormal then returned to within range. I just reviewed my levels in my GP record and noted that...
There is still something unrecognised that creates suspicion about an ME diagnosis. I have just returned from the GP's, not one I usually see, and...
I still use several techniques to try to reduce infection but I'm not sure that I'm being totally consistent. I still like anyone who visits to...
I am glad that you have had your surgery done with the best chance of a good outcome. I hope you continue to be well. Do you mind if I ask what "...
I like the word scrutiny. It implies detailed inspection. Scrutinising ME/CFS? edit: Oxford dictionary "critical examination or observation"....
That's fine @dave30th. It's not as if they're going to change everything is it? How can so many words be written and things stay the same? Merry...
'Like' button pressed. Thanks for raising this @boolybooly .
Do we know how many members there are? Have we seen the list of the minimum of 20 members? I wrote to my MP who wrote that his team would apply...
I'm sorry if my last post was a bit abrupt. It has been a tough couple of days for us all in the ME world so it's time to stop and try to rest.
Separate names with a comma.