I'm not sure what you are arguing here. The trials of exercise based therapies for ME/CFS have uniformly failed to show benefit. Large surveys...
That's an excellent and very powerful letter, @Wyva. I hope they take notice and make changes. You are doing a magnificent job of standing up for...
It's a very long time since I studied stats, but that argument doesn't immediately make sense to me. What difference does it make whether you...
Sadly I think we have seen that problem consistently across almost every psych and exercise intervention. We need such trials designed with an...
I have skimmed the article and looked at the data. As far as I can see there's no correction for multiple comparisons, and the ones that seemed to...
@Beth, thank you for sharing your experience. I'm really sorry to hear the stats about young people having a better chance of recovery have been...
A big flaw in the 2007 diagnosis is giving PEF as an alternative to PEM.
Some posts have been moved to Brain Retraining treatment for ME/CFS and Long COVID - discussion thread
The other hemisphere, heading into autumn, I think.
Press Release: Leading UK Charity invests in Canadian trial of drug treatment for ME/CFS and Long Covid It's not a new trial. It's the one Luis...
The MEA wrote to the DWP with concerns about the benefit changes. The reply links a DWP green paper consultation. Consultation survey | Article
To me, the worsening of some symptoms with any exertion that necessitates rest breaks, and I can do about the same amount on following days is...
@Friendswithme thank you for your response. I find it interesting reading your perspective. I note two things you might like to respond to....
No. Its a hypothetical construct which people can only guess at, and find to our cost with PEM that we've got it wrong this time. Many if not most...
A flippant response is we won't get overtraining syndrome, or break our backs diving into shallow water or die from heat exhaustion while on...
I have a feeling we've had this discussion multiple times before. Out of curiosity I looked at Phoenix Rising, a forum some of us belonged to...
Ergh. Me too. Very distressing.
Sorry, yes, I misremembered. I can't find the study I meant to link.
The problem with pacing up as applied by at least some BACME members in UK clinics is it isn't just the sensible doing a bit more when your health...
I am pleased for you that you have recovered. Perhaps, instead of telling us to read a book, you might like to do a thread in the Introduce...
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