For ME/CFS we really need a fourth option 'cannot do at all'. I score 0 to 10. I'm at the moderate end of severe. Very severe can't do any of...
It's an essay about other people's research. There are no references listed. I think the first one referred to is probably this one: Circulating...
The prime place given to BACME in this response worries me.
I assume you a referring to studies using questionnaires such as the one that purports to diagnose catastrophising. I recommend you read this...
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I assumed this was a separate use of funds from the one CS has been hinting at.
They have in the past.
So a silent session where attendees contemplate the fact that there is no treatment? Or an invitation to create a quackfest?
That section about pwME quoted is such a ridiculous fantasy. And deeply insulting.
I guess it's a standard process to check for scammers. If they are going to do a work capability assessment they should warn you. I think it would...
I am probably one of the people you are referring to who criticises some studies without reading beyond the abstract. The point your comment...
The 6 minute walk test in is uniterpretable in PACE because too many didn't do it at the 12 month stage.
My response would be 'involve S4ME members or other expert patients in the research design from an early stage'. And don't use questionnaires,...
Yes, all perfectly rational responses to having LC. Nothing to do with a made up disorder called SSD.
Surely all the so called association between SSD and LC is simply an overlap in questionnaires.
Someone swallowed the dictionary for breakfast.
The Australian Griffith University team have been publishing papers on calcium channels and claiming it's a biomarker based on very small studies...
I think if I were doing it I would contact the publications as soon able to, and hope that a journalist thinks it's an interesting enough story...
Welcome, @phantom. Thank you for joining us to share your experience of the clinic.
That seems a pretty daft experiment. What about the after effects of the extra exercise? What about the longer term effects of extra activity...
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