Thank you @jnmaciuch for explaining so well the risks to pwME of therapies of this sort, and the messianic zeal of their converts. And thank you...
I think you are wrong. Objections to PACE and to a Norwegian study of LP have been objected to before starting on grounds of bad trial design,...
Then why aren't all the stressed people in the world, which is probably practically everybody at some stage in their lives, suffering from ME/CFS?...
Sure they can, in some specific instances, but that says nothing about whether ME/CFS symptoms can be brought about by beliefs, nor that changing...
Surely fear is an emotion that is experienced as fear that the person is consciously aware of. If someone has a fear that stops them doing an...
You were claiming a lot more than pain having an emotional component. To me 'emotional attachment' implies someone preferring to be in pain, or...
I'm sorry I don't have the capacity to search through all your comments to find an unnamed review and search it to find evidence that pwME have an...
I wonder how often that really happens. I would say without exception all the people I've come across with ME/CFS either in person or online, and...
About a student who is bedbound with ME/CFS, POTS and gastroparesis. This is from his fundraising page, asking for £10,000: It gives no...
I filled in the survey and voted for all online and suggested it should be free for pwME. I attended parts of the virtual conference a few years...
You are doing a brilliant job of documenting all this, @MittEremltage. Perhaps I should stop being shocked by the unscientific and harmful...
It may not be very common to get as far as having a bottle of pills and not taking them, but I think it's very common for many of us to prefer our...
I think there has been some suggestion that a hospice approach to care may be more appropriate for people with very severe ME/CFS than hospital...
Thank you, it was all a very long time ago. I was glad that by the time my daughter started suffering severe period pains there were stronger pain...
Cause or effect? Short term pain or chronic pain? Many women learn stoical acceptance of pain when they start their periods. In my generation...
I think the key point here is whether the patient is provided with honestly presented impartial information. If a pwME is told that GET has been...
Thank you, @shak8 for your clear explanation. @dundrum, I don’t understand what you mean by 'emotional attachment to pain'. Can you explain...
Caroline Lucas has a PhD in English Literature. She's not a medical doctor.
Often the case with researcher meetings because they share unpublished data, and want to be free to discuss research developments.
I see that as a bonus, not a snag. FUNCAP is designed so the individual section scores provide useful information.
Separate names with a comma.
