How many though have ever definitely had instant PEM? I get fariguability ie tired during a task I think we need to be very sure I’m afraid...
Yes this situation really needs some careful thought because it is a major issue they don’t seem to get the cumulative either so focus on...
Heck could we even add in a line that uses better language to not the issue of papers that are actually acting as Trojan horses to spread stigma...
That last one on ethical considerations is the topic that calls out to me as most useful and fruitful in it really should be heard if done well...
3. The people behind it and their likely reaction not being at a similar level to the norm in the profession so people I guess at all levels, not...
Good letter pointing out important problems such as straw man and inversion of issues and claiming things in the name of ‘reducing stigma’ when...
Isn’t this like the issue noted in Jonathan’s testimony for the Nice guideline - they’ve proved the therapy/theiry/ideology is wrong and doesn’t...
Is that central fatigue they are measuring or a temporary pause after a short run? ‘How brain reacts to a run in healthy volunteers for a 3km run’...
And that the stuff like think positive or trying sleep hygiene (leading to no sleep and worse insomnia by banning naps when issues are caused by...
I struggle with contrast most so for example don’t watch tv in a dimmed or dark room , whilst many well people enjoy that for a film (although it...
Interesting and odd to read just after I’ve read the thread on Suzanne o’Sullivan, who was also apparently a neurologist, but also a...
How is she meeting with people with this every week if she is a storytelling writer? and who is attending all these clinics? How would she know...
And even if somehow it doesn’t cause harm (illness-wise) in the language of physical assaults or situations then it causes however many years or a...
And if they actually are the same. I get the impression lots who have improved are more fragile and conscious of being dependent on strict limits...
This is important point @forestglip noted when you also think about what I think has probably been a continual and consistent lobbying from...
That first quote box is interesting. In the factors associated with severity there are six and one was ‘involvement of a psychiatrist’ but there...
OK, as an update to my first line I have read Charles Shepherd's letter to Ashley Dalton MP: ME Association - The MEA writes to Ashley Dalton MP –...
Yes I think having it clearly titled as such would be worthwhile important it is easily found by external search?
Brilliant it’s the first time I think that I’ve seen more info on what the draft protocol mentioned in feb 2023 others outside me/cfs...
I don’t think cfs or me/cfs diagnosis can be done by second-hand looking through records. No wonder we have some of those groupings suggested - eg...
Separate names with a comma.
