I did notice the other day when looking at the Versus Arthritis website regarding something else that they'd digressed into a page on fatigue...
I agree with the replies above from Jonathan Edwards and @Hutan and emphasise that when I was studying psychology most CBT was very much only...
That’s brilliantly clarified it! Thank you!
Hello! Could I ask what a rate limiting step is? I can guess (something upstream that limits 'how much/time' but then I come a bit unstuck as to...
I think there is enough ‘research’ plus interviews and articles out there to analyse them anyway. Who is it that they general target? I think...
There is the issue in calling themselves experts: ‘helping the patients feel listened to’ is what they think is the solution to sensible people...
I feel relieved we are thinking similarly. On that last point (and the reply I have just given to @Trish because it mentions executive function -...
The sensory one is a straight yes and is I'm pretty sure already answered in the scientific psychology literature, cognitive psychology and...
There is something about maybe thinking about looking at the best and most reliable way on these points we can be as a group getting our epistemic...
I've put this here because I think we forget how important PEM is as a concept. And how this dovetails with 'cumulative energy limit/envelope',...
I haven't got the ability to find a different thread for this right now (and there are bits, such as where they mention talking therapy 'to...
I don’t know the details of it well but it sounds targeted at energy limiting conditions and illnesses and also feels like it shows a lack of...
I think the lack of vocab and clarity doesn’t help actually but yes it is a big job to think through due to the experience involved and thinking...
Yeah I’m more remarking on my lack of good name for it - I think I started using that because of the need to explain ‘and now this ends’ and...
I think back to when I was younger and when I wasn’t in PEM outsiders might have thought my function in the sense of going on a night out or...
It’s good to see these limitations/issues/complexities not just being talked about, but the detail of what state people were in and why annotated...
That’s interesting because that’s the part I tend to call ‘cognitive fatigue’ - noting the pain part is obviously an exception in not fitting...
I thought that earlier on something. Basically it isn’t just the journey but if I had to set an alarm (as well as all the packing etc) just that...
And if it is subjective measures there is the issue of the wired thing vs people answering literally on how they feel (eg we know we feel hyper...
I’m actually quite/more worried about how they saw delayed PEM and then explained it away assuming it must be an external factor without even...
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