I don't know. Both ME/CFS and the flu are illnesses that underlay the various symptoms someone gets with them and can be exacerbated by rough...
I'm not sure that anything ends the beliefs of these individuals, and @Friendswithme has a point that these days given how much money has been...
You are correct it is a straight Orwellian tactic the bps colonising all words that patients would need in order to change them into meaning...
It’s bigotry about social acceptance only being achieved if people learn to lie and hide their disability m we’ve all lived that tyranny and it’s...
Just another shifty tactic of denying/removing their existence by renaming something with rights and meaning to something that is a word which is...
It’s trickery as well I’ve come to realise - another method of coercion and silencing - to trick people that probably wouldn’t never use that term...
I think this last bit is the aim . But it always has been. In the most unloved cruel way possible. The work bs is a cover they know isn’t...
And fear and the idea of 'subconscious fear' nonsense (I say this as someone from a psychology background offended by someone trashing the subject...
indeed. Claim it is thousands recovered but at best a few actual 'testimonials' (in commas as many - of the ones posted, because there aren't many...
I see where we might be finding confusion / cross purposes ... can I ask do you have ME/CFS or/and do/did you have another condition that is...
that same issue of bps and backe being allowed to treat ‘anything but me/cfs’ in such a way that they harm pwme just in case they don’t have it....
Watched an interview on a totally different topic tonight for a short time and saw the phrase “we need to remember that ignorance is not a crime...
Sadly for us we do look at them - hence why our comments tend to be on details within them im pretty wary about the lack of examples provided...
But none of them have been methodologically sound? Happy for you to post one that is here
1. I can’t understand fully - it was a response to the point on unblinded subjective studies being a problem . Yet you’ve appeared to suggest the...
It would be very worrying to suggest trials of bedbound patients without mentioning the ethics given a big problem with bps is many of those...
we don't quote these classics enough as coercion and social pressure is used to an extreme extent in wangling 'results' from CFS people -...
or at least have their gravy train turned off? and the narrative of the patients vindicated (so those made more severe by it are no longer...
@Hutan also made the interesting point a while back which I don't know whether it was resolved that do we define length of PEM as the length of...
@Chestnut tree and @Kitty I think were replying to the point that if people are changing PEM to include 'non-delayed' then there needs to be a new...
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