This is more important than we might think. it underlines the issue is exhaustion and load (same category - more load = more exhaustion) and not...
Well those last lines are a contradiction in terms unless we are finally looking to blow the bps school out of the water and look at proper...
Don’t/ didn’t they re-diagnose with Pervasive Refusal Syndrome (which sounds more like severe ME/CFS / proper me/cfs with PEM and sleep reversal...
That sounds familiar for when I was moderate. Except I was in the office for 2-3 days a week so it’s an average based on when working from home...
I’m severe and I’d say by this level you are into the territory of it being about hour (s) per week rather than day you can be ‘more upright’ (but...
I think that ME/CFS research needs its own ethics charter and experts full-stop. Currently the likelihood you've a few people round a table who...
Thanks for posting this It is the most important stat If it weren't for the fact that coercion has to be a massive factor regarding drop-outs...
What's really upsetting me at the moment is seeing or hearing about some really ill people getting the sophism from BPS of 'it must be behavioural...
Same old Krypton Factor trick: At 6 months, participants allocated to Fatigue In Teenagers on the interNET in the National Health Service were...
I don't use the term much and haven't used it here (partly because when I've felt poisoned by alcohol I haven't really because I've know where...
Here's another random one. At the times where I was more up to drinking, trying to 'norm' somewhat eg as a student etc and getting away with it by...
You see I didn’t blink at the word too much because my most distinctive food poisoning (can’t remember another) was a curry where a few hours...
Imagine you had these then imagine choosing between these eccentric options and do these surveys of mood issues what on Earth do these people...
So scary all of this
It needs to be energy conservation as the main management strategy then anything else isn’t even that - just add ins fir other things?
There is something important with studying this well by people who don’t have the wrong mindset (of don’t like what the respondent said then it...
I've had ME/CFS a long time and although I had drunk before I had it I was young so who knows what some experiences 'would have been' if I hadn't...
And there is a strong line of serious questioning that needs to be made about it being plain as day there is a major ethical/informed consent...
I don't fully know how to word this but (partly due to how it is sold, partly due to the inaccurate perception of those 'inside it') I'm getting...
I dread to read this in case it’s a programme teaching parents to gaslight/abuse-by-debying-reality-or-needs their genuinely really ill children...
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