I’m exhausted but replying to this because I think it’s important and I’ve had an uneasy feeling about this repeating old mistakes potentially so...
Agree
The thing is that there are quite rigorous ways of checking if someone has ME/CFS (particularly as they get more severe from manner of questioning...
I thought quite often it operated in reverse where a treatment that helped came from observing coincidence eg didn't things like quinine for lupus...
Is only going with those who have definable PEM going to mean that those who don't yet/aren't currently in that position (either because they...
I think it is quite common to be able to do so depending on what you mean by pathological. For example a group might have been defined as...
Maybe this/these questions would be more appropriately thought about and discussed in a members-only/different and specific to the issue thread?
Thank you for flagging this information. You are right the more I think of this the more it could present a catch 22 if the person who would...
Important analysis/fact correcting. The PR being put around about the 'reason for cuts' for example seems to have talked a lot about young...
From the point of view of ‘experimental condition’ I’m in the been on high dose time release for recent years for other injuries. Even with that...
This might not be the same thing as it doesn’t say ReMedi and the about page is titled ‘Living Better with ME’ which could be just a page title or...
Important thing to flag - could they be collecting these as stats?
Currently there is a fb post letting encouraging people to feed back on their clinic [MEDIA] These never work it seems so go to MEA fb page and...
Age - thinking about the demographics for eg Devon. Unless that has changed it used to be pretty heavy on older folk year-round. More time to...
THe other day for CJD cruetzfeld jacob (I notice that CJD doesn't come up when you search the acronym here?) I came across the UK compensation...
It's interesting. Certainly feels a more feasible number (and feasibility matters on these things) Cornwall has been a pretty good clinic for...
I'm not necessarily a fan of this scale and will probably dissect its use for all sorts of research purposes. But it is also a nagging thing that...
Ahh the other bit that I'm getting faint memories on with this, so will need to look up old posts, is that it was originally only intended to be...
This is an important question. And I seem to remember some important points about frames of reference that were prompted by another paper in the...
Is this a public thread or members only? it might be useful to delve more into why they are doing this and what they are collecting obviously...
Separate names with a comma.
