And the irony that if you have continual decline type in the poor information situation that there has been up until now (and until whenever this...
I’m not sure on the analogy the bit that is missing from it is whether said special issue is planned ahead enough ie one done deliberately to try...
This
Yes I’ve seen in other places that certain clinic’s have used their fatigue clinic model to eg get grants from cancer charities or maybe nhs to...
I’ve just noticed the last paragraph of this: “BACME is a charity that represents clinicians, specialist ME/CFS services and people living with...
I’m putting this here but it can apply to a lot of topics and whilst it id good in length and getting some points across I’m sure there are others...
I was thinking this - that it doesn’t mean they think the methodology was a problem and their latest stuff has simply rebranded with the same...
Except they fail to mention I assume many were as poorly as they were due to their treatment being harmful in top of the illness, where other...
Indeed to the normal long term responsibility on care the other issue is that the relapse term used for cfs comes from mental health/regab...
This one particularly relates to the NIHR type nonsense, therapist-based and other psychosomatic misleading research I have seen far too much of...
Me too
ME Association - A Chairman resignation statement – to the ME... | Facebook
I’m sorry you are stuck being treated this way I think everyone used to know this is just a thin excuse for staff to provide bad treatment- and...
Yes indeed and it is just a distract from the actual question being asked tactic. This is the excuse (why it happened) that comes after they...
That quote is fascinating it is gaslighting , not ‘dismissed as gaslighting’ . and the para is arguing for those who dare to object to being...
interestingly he is one I do tend to avoid, there's normally not much to what he says or behind it, so there isn't much to add or dissect ie it...
So I find the fact in my daily life I'm permanently having to waste my energy overlooking these people's flaws and sensitivities (based on their...
it's maybe different for me because that's what nearly everyone I meet is polluted by, so there is some sense of validation of at least knowing it...
Good catch
Spot on. This conversation is basically to different extents on different things with different reactions something that for decades I’ve had to...
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