Very very similar story here. We did so much to try and prevent the decline. I'm so sorry @CorAnd.
Update from the ME Association / CureME Biobank meeting https://meassociation.org.uk/2025/04/update-uk-me-cfs-biobank-steering-group/ The ME/CFS...
The CureME team has a lot of stored samples ME Association lists the wrong funder for the HHV6B study. It should be the US NIH/NIAID and not the...
On Twitter I asked Karl Morten why his initial muscle cell + patient blood experiments looked so promising but the follow-up was negative. This...
@Jonathan Edwards Have you seen this thread about an Oxford study monitoring muscle with MR Spectroscopy. In the thread there are links to other...
I'm sure this is guiding the NIH RECOVER-ENERGIZE study. Ugh.
New version of preprint | Link | PDF This seems to be the commercial antibody test used from Arup Laboratories. 0051033 Ganglioside (Asialo-GM1,...
FYI - looks like there are some pitfalls with Elispot relating to sample processing time. Something to be aware of. Optimization of Peripheral...
Here is a paper describing the errors of the Perez et al paper. The major errors were easy to spot with spot checking. Re-analysis of Genetic...
That link was to a range of papers for Digoxin in various diseases, all suspiciously similar. This is the link to the ME one. HYPOTHALAMIC...
There is a post on PR here for this paper if you are interested in peoples thoughts on it. It was published before s4me existed and has some...
Dr Jose Montoya presented the results at the 2017 CMRC conference - see video starting at 16:36 [MEDIA] He spends some time discussing the...
FYI - Dr Jonas Berquist update on his hormone tracking project on the OMF website shows "Working on publication of steroids in ME/CFS."...
The paper mentions that TGF-B was elevated in 5 of 8 previous studies. From memory this is the largest study to date. So in a way it replicates...
One of the largest cytokine studies in ME/CFS was the Montoya Stanford study which showed consistent elevation of TGF-B across severities and...
Adding link to post containing video of Dr Jaqueline Cliff's presentation posted March 2025 that builds on the work on this paper. In the video Dr...
I think you hit the nail on the head @V.R.T. I was mild/moderate for decades before the switch to Severe. When mild moderate my lymph nodes were...
So the question is why do Severe ME patients not show a correlation between anti-HHV6B antibodies and cytotoxic Tcell activity!!!! I think this...
I encourage people to watch Dr Jaqueline Cliff's presentation on data from her teams NIH funded study on HHV6B saliva vs T cell and HHV6B...
I came across this tweet from the ME/CFS Biobank. In the linked video Dr Jaqueline Cliff presented data from her teams mostly NIH funded study on...
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