Search results

Thanks for the good points and the clarity @Jonathan Edwards. I seem to remember from last year (perhaps from a blog by @dave30th but I could be wrong) that the status of CMRC was a bit fuzzy, and some charities are actively involved with CMRC and are members of the Executive Board. It's also...

The CMRC is very good at echoing what others have been saying for years and have actually been doing something about. To coin a phrase used by Simon Wessely and Peter White, I see old wine in new bottles in this latest news from the CMRC.

Article on No Isolation website about one of the students trialling AV1 though IiME Research: https://www.noisolation.com/uk/article/2018/makayla-and-her-av1/ Extract: "Makayla’s Mum feels Robbie has improved Makayla’s day-to-day life, stating: This is the first time in 8 years that I’ve...

Karl is now also speaking at the conference: http://www.investinme.eu/IIMEC13-news-180301.shtml

The IiME Research closed session spans two days prior to the one day public conference (plus the opportunities at the evening dinners) and this year there will be an extra closed day specifically for Early Career Researchers. Maybe the CMRC conference events will expand on similar lines.

The problem in UK is that patient organisations are used as a vehicle to enable and justify poor practice in medical research.

Additionally, the charity Invest in ME Research published a proposal in 2010 for a UK Centre of Excellence for research and treatment of ME with the hub in East Anglia, where the The Genome Analysis Centre (now called Earlham Institute) is among the facilities at Norwich Research Park, and is...

Flyer now available: http://www.investinme.eu/Documents/TTF2018/Flyer%20TtF%20March.pdf

About AV1 robot but not specifically about M.E... Link to the article: http://news.trust.org/item/20180301132606-p5j47/?cid=social_20180301_75703347

Yes, she is presenting at the conference this year: http://investinme.eu/IIMEC13-news-180104.shtml

Association of chronic fatigue syndrome with premature telomere attrition Mangalathu S. RajeevanEmail author, Janna Murray, Lisa Oakley, Jin-Mann S. Lin and Elizabeth R. Unger Journal of Translational Medicine201816:44 https://doi.org/10.1186/s12967-018-1414-x Published: 27 February 2018...

- Mar 18: Grant Award for biomedical research into ME - at Thinking the Future 2018: http://www.investinme.eu/thinkingthefuture.shtml#news

Welcoming Avindra Nath: http://www.investinme.eu/IIMEC13-news-180210.shtml Other news: http://www.investinme.eu/IIMEC13-news.shtml

That's awful and so unnecessary. Yes, 18 years into the 21st century, it's shameful really.

Sounds as though a start has been made in Scotland... 10 hrs ago Classroom robot being trialled in East Lothian schools: http://www.eastlothiancourier.com/news/16049249.Classroom_robot_being_trialled_in_East_Lothian_schools/

Related to the issue of isolation of children with ME: http://www.investinme.eu/IIMEC13-news-180209.shtml Also, Channel 4 piece on use of AV1 for adults, interestingly, one is a paediatrician and the course was on genomics...

I'm so sorry you are suffering in this way.

The speaker for this new event in memory of Anne Örtegren at the 13th International Invest in ME Research Conference in London on 1st June 2018, is Professor Theoharis C. Theoharides, Professor of Pharmacology and Internal Medicine at the Director of Molecular Immunopharmacology and Drug...

Professors Angela Vincent (Emeritus Professor of Neuroimmunology at University of Oxford) and Anne Cooke (Emeritus Professor of Immunobiology in Department of Pathology at University of Cambridge) will be attending the Thinking the Future 2018 conference in London. - Feb 18: Professor Jonas...

You're right of course, thanks. I do think it would have been reasonable for the REC to give an unfavourable opinion for this particular feasibility study particularly as it involved minors, and at the most basic level, EC failed to justify why the intervention should be tested on children...