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I think rolling PEM is an issue , particularly for new / mildly affected . PEM can be caused also by a build up , not provoked by a single incident . This makes it particularly difficult to unravel . It makes it so insidious HRM and apps may have a role here, as you have data over time...

@Dx Revision Watch

It's a governmental thing . We're not paying for a private app we will devise our l own. Control and money. Scottish government is doing exactly the same thing with energy efficiency for buildings. There's a methodology which is proven for where they want to go , but they won't adopt it . Have...

But nothing seems to be . Guidelines have had lip service ( aka rebadging ) since adopted .

I have everything crossed that the limited genetics in Decode ME turns up something which can find funding to be further explored . Otherwise this looks like a complete ****show .

Article on substack re book from Long COVID Advocacy https://open.substack.com/pub/longcovidadvocacy/p/unheard-by-dr-rageshri-dhairyawan?utm_source=share&utm_medium=android&r=1d5w3s

I tried ...

The MEA is making itself increasingly irrelevant. Who knows what will happen when Charles Shepard retires .

Power asymmetry is something paediatric clinicians simply do not understand. Where educational accommodations and in some areas the functioning of the family unit can be directly affected by clinical interaction and the clinicians world view of your illness, responses may be tailored to...

Yes, one of my sister's in law ( if everyone was married) thinks my daughter chooses to live like this as she can't believe the NHS can do nothing . .... Catch 22

Given that my aunt and my daughter both have severe, moderate/severe ME/CFS and trait wise are scarily alike, this is the most positive thing to happen for years! Thank you @Jonathan Edwards for listening , being curious and exploring possibilities.

I also wonder if the same numbers of male and females fall ill with PVF but more males recover .

Its a bank holiday today

Revisionist. With recent BMJ piece it's trying to keep a paradigm alive . It's a huge house of cards .

Also from Brian Hughes The article contains nothing new, just rehashes points made in other recent pieces The @bmj.com know this stuff is controversial. But that's what they want By requiring replies to be routed through their 'Rapid Responses' platform, they drive traffic to their website...

Yes it ticks all the boxes for a cult

This . I live in the land of Carson and Stone and their ever expanding empire .

Podcast re RFK which may be of interest as background . ETA mods feel free to move if there's a more appropriate thread Maintenance Phase debunk a lot of complete nonsense ( my daughter is a fan) . Note language can be strong...

An ice block in a bowl in front of a fan can be effective

Remote monitoring is being done for diabetes . ( and perhaps for other conditions) Glucose monitoring data is shared direct with specialist diabetic nurses who can assess responses and optimize insulin dosage / type of insulin . Tends to be for newly diagnosed or after significant negative...