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  1. erin

    Bitter Gourd

    @ladycatlover, lucky to have such a market in Liverpool. It looks great. I saw bitter gourd in Asians markets in UK all the time. They are green and a bit longer and thinner, but it shouldn't matter, same properties. I will definitely try fresh ones when I'm back to UK.
  2. erin

    Bitter Gourd

    Here how it looks. It tastes like bitter cucumber, bit more crunchier than cucumber. Red seeds are in a very sweet, honey like gel. Never eat the seeds but the red gel like substance is very good to eat. I actually don't find the fruit bitter maybe got used to it. I actually enjoy eating it...
  3. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    If you really believe that drug companies exist to make money as you say you do, and obviously sustain their profits, the system of testing and make sure the benefits outweigh the risks that you talk about is out of the window. Testing can be not perfect as you say but pretty accurate but will...
  4. erin

    Bitter Gourd

    Still on bitter gourd. I stopped all medicine for GI problems. It is working. Less brain fog and it helped with the recent horrid flu. First time I didn't have lung problems with a flu and recovered with paracetamol only. Still on thyroxine, bblocker and anti histamine. 3 daily medicine is...
  5. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    Alvin I am not defending snake oil. Using the word snake oil for all the alternatives is not right and you do not understand where I'm coming from. I am not saying that alternative therapies are the answer either. Do you realize there is no answer? Do you understand that goverments and drug...
  6. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    It depends where you are in the world. And sorry maybe I was not very clear, family can decline the treatment, but it is this or quick death so they are in a very sorry state and can't make decision. Chemo is given since he was 5,5 months old. It absolutely not helped, cancer keep coming back...
  7. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    Really? Seriously? Do you really think doctors understand the risks and rewards? I don't. Chemotherapy maybe saved millions but it killed millions too. It is government sanctioned treatment/ drug and it makes pharmaceutical companies billions, it is a business. Government and agencies won't...
  8. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    I find this "snake oil" is a cliche use of word, to me its use appears to conform to the system. Sorry, but everything is snake oil for an ME patient and what you're offered is CBT and GET. The rest is snake oil. Seriously fed up with this. I have tried few "snake oil" or alternatives as I would...
  9. erin

    [BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)

    Many licensed medicine kills people but it's OK I guess. License to kill; chemotherapy killed and kills millions but we accept it OK.
  10. erin

    Golden hour (/month)

    I definitely feel worse when it gets colder. Once, I had a tropical holiday Christmas time I instantly switched back to better for the duration. I'm very poorly in winter. At the moment I have a cold (maybe a flu) I feel rotten.
  11. erin

    Remission when ill with other infections?

    I get a brake from ME initially if I catch a virus, but then I get significantly worse for a long time. I suffer the flu much longer than a healthy person. And afterwards ME gets worse and stays that way for a long time.
  12. erin

    Mycoplasma infections in people with ME/CFS

    I was given a fluorquinoline anti-biotic after a mycoplasma infection previous year. It ruined my already vulnerable health. It took me more than a year to get back to a reasonable state of health with a lot of research and various private specialist visits ( gastro, skin, internist) without...
  13. erin

    Alone and Needing Back Surgery-need advice

    So sorry not being here and not following how you were @LucyLouWho, I had my internet cut for 10 days and so unwell to get out and about to any cafe etc to get connected. All the meds you're taking; especially steroids cause distended stomach. Are you eating well? I hope you get food...
  14. erin

    Alone and Needing Back Surgery-need advice

    Thank you @Gingergrrl, if you get a chance to speak to her and if it is appropriate at the time please give our regards and speedy recovery wishes. I can no longer sign in to the other place as they changed something after the last upgrading their system and my browser won't allow me. I use a...
  15. erin

    Alone and Needing Back Surgery-need advice

    I'm sorry that I know nothing about your inquiries. So sorry to hear this happened to you. I hope you get the help and the surgery asap. Will be praying for you and for your recovery. I don't know what else to say.
  16. erin

    Elidel (pimecrolimus) cream for dermatitis

    I went to my records (online) and got my diagnosis; it is atopic dermatitis not psoriasis.
  17. erin

    Elidel (pimecrolimus) cream for dermatitis

    @leokitten the dr who prescribed Elidel did not mention Stelera to me. I'm not sure what my diagnosis either. A friend of mine who suffers from a severe skin condition had mentioned Stelara. You seem to be experienced and have detailed information about both condition. I have heard about...
  18. erin

    Elidel (pimecrolimus) cream for dermatitis

    Thank you @leokitten, good to know that Elidel is not as risky as I thought. I've heard about Stelara (anti IL23?) is next stage if the eczema comes back. I hope it doesn't, as this medicine is so expensive.
  19. erin

    Elidel (pimecrolimus) cream for dermatitis

    I was prescribed this medication in May and it was very effective for my eczema. I had it for more than 10 years and it was away in two weeks with the use of this cream. However, I was told not to use long term as it can cause cancer. I had two flares and used only for a day or two and that...
  20. erin

    Levocetirizine dihydrochloride (Xyzal)

    I've been using Xyzal, half a pill every night since March. I was feeling not too bad since trying bitter gourd for my GI problems and stopped Xyzal for few weeks. This was a mistake, I was OK for a week but all my problems started to come back. So back to Xyzal, half a day. Now half a pill...
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